Siblings of children with cystic fibrosis: quality of life and the impact of illness

被引：24

作者：

Havermans, T. ^{[1
]}

Wuytack, L. ^{[1
]}

Deboel, J. ^{[1
]}

Tijtgat, A. ^{[2
]}

Malfroot, A. ^{[2
]}

De Boeck, C. ^{[1
]}

Proesmans, M. ^{[1
]}

机构：

[1] Univ Hosp Leuven, CF Ctr, B-3000 Louvain, Belgium

[2] UZ Brussel, Cyst Fibrosis Ctr, Brussels, Belgium

来源：

CHILD CARE HEALTH AND DEVELOPMENT | 2011年 / 37卷 / 02期

关键词：

cystic fibrosis; impact of illness; quality of life; siblings; ADJUSTMENT; KNOWLEDGE; VERSION;

D O I：

10.1111/j.1365-2214.2010.01165.x

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Objective To asses self-reported quality of life (QoL) and perception of impact of illness on siblings of children with cystic fibrosis (CF). Methods The Child Health Questionnaire was used to assess QoL. The Sibling Perception Questionnaire was used to assess impact of illness. Results Siblings of children with CF (n = 39) rated their QoL higher than siblings of healthy children on most QoL domains (e.g. Physical Functioning, Behavior, Mental Health). Siblings older than the child with CF reported a higher impact of CF than younger siblings. Perceived impact of illness was higher when the child with CF had been hospitalized or was intermittent or chronically infected with Pseudomonas aeruginosa. Conclusions Siblings of children with CF reported a good QoL. QoL and impact of illness were related to indices of CF severity. Insight into sibling-issues helps CF teams to provide family-oriented care.

引用

页码：252 / 260

页数：9

共 39 条

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