Development of a telehealth intervention to promote care-seeking among transgender women of color in Washington, DC

被引:16
作者
Magnus, Manya [1 ]
Edwards, Elizabeth [1 ]
Dright, Aurnell [1 ]
Gilliam, Leandrea [1 ]
Brown, Angela [1 ]
Levy, Matthew [1 ]
Sikka, Neal [2 ]
Siegel, Marc [3 ]
Criss, Vittoria [1 ]
Watson, Christopher Chauncey [1 ,5 ]
Machtinger, Edwards [4 ]
Kuo, Irene [1 ]
机构
[1] George Washington Univ, Sch Publ Hlth, Dept Epidemiol, Milken Inst, 950 New Hampshire Ave,NW Suite 507, Washington, DC 20052 USA
[2] George Washington Univ, Sect Innovat Practice, Dept Emergency Med, Washington, DC USA
[3] George Washington Univ, Med Fac Associates Inc, Washington, DC USA
[4] Univ Calif San Francisco, Dept Med, San Francisco, CA 94143 USA
[5] Gilead Sci Inc, 353 Lakeside Dr, Foster City, CA 94404 USA
关键词
access to care; health disparities; tailored intervention development; telehealth; telemedicine; transgender health; PREEXPOSURE PROPHYLAXIS PREP; BLACK-MEN; HIV; BARRIERS; ABUSE; SEX; PREVENTION; MULTIPLE; BURDEN; RISK;
D O I
10.1111/phn.12709
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background Transgender women of color (TWC) are an underserved population who often experience high rates of HIV and barriers to care including stigma, violence, and trauma. Few health information technology interventions are tailored to serve TWC. The purpose of this study was to inform the development of a TWC-specific telehealth intervention to increase access to care. Methods Formative qualitative semi-structured interviews and focus groups were conducted to develop a customized telehealth intervention for TWC. Participants were TWC >= 18 years living in the Washington, DC metropolitan area, with at least one structural barrier to care and clinicians >= 18 years who provide care to TWC. Transcripts were analyzed using thematic coding and content analysis; barriers for TWC were categorized into Individual, Organizational, and Environmental levels. Several day-long meetings with TWC and stakeholders were convened to develop the intervention. Results Saturation of theme on barriers to care was reached with 22 interviews. Identified barriers to service receipt included survival, instability, temporal discounting, and prioritizing hormone therapy over care, incongruence between providers and patients, pessimism, and lack of cultural competency. Each was intentionally addressed with the telehealth intervention. Conclusions Data informed the development of an innovative and customized telehealth intervention for TWC. Through the integration of technology and peer consultant outreach, we developed a novel approach that can address population-specific challenges to care. Further development of this model may be able to improve health outcomes among TWC.
引用
收藏
页码:262 / 271
页数:10
相关论文
共 42 条
[1]   Introduction to Lesbian, Gay, Bisexual, and Transgender Youth Health Preface [J].
Adelson, Stewart L. ;
Dowshen, Nadia L. ;
Makadon, Harvey J. ;
Garofalo, Robert .
PEDIATRIC CLINICS OF NORTH AMERICA, 2016, 63 (06) :XVII-XXI
[2]   Barriers to engaging transgender women in HIV observational research (vol 107, pg e9, 2017) [J].
Ayala, D., V ;
Ibanes, G. E. .
AMERICAN JOURNAL OF PUBLIC HEALTH, 2017, 107 (09) :E17-E17
[3]   Worldwide burden of HIV in transgender women: a systematic review and meta-analysis [J].
Baral, Stefan D. ;
Poteat, Tonia ;
Stromdahl, Susanne ;
Wirtz, Andrea L. ;
Guadamuz, Thomas E. ;
Beyrer, Chris .
LANCET INFECTIOUS DISEASES, 2013, 13 (03) :214-222
[4]   Remote Monitoring of Patients With Heart Failure: An Overview of Systematic Reviews [J].
Bashi, Nazli ;
Karunanithi, Mohanraj ;
Fatehi, Farhad ;
Ding, Hang ;
Walters, Darren .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2017, 19 (01)
[5]   Utilization of the Veterans Affairs' Transgender E-consultation Program by Health Care Providers: Mixed-Methods Study [J].
Blosnich, John R. ;
Rodriguez, Keri L. ;
Hruska, Kristina L. ;
Kavalieratos, Dio ;
Gordon, Adam J. ;
Matza, Alexis ;
Mejia, Susan M. ;
Shipherd, Jillian C. ;
Kauth, Michael R. .
JMIR MEDICAL INFORMATICS, 2019, 7 (01)
[6]   Experiences of Transgender-Related Discrimination and Implications for Health: Results From the Virginia Transgender Health Initiative Study [J].
Bradford, Judith ;
Reisner, Sari L. ;
Honnold, Julie A. ;
Xavier, Jessica .
AMERICAN JOURNAL OF PUBLIC HEALTH, 2013, 103 (10) :1820-1829
[7]   Syndemic Theory and HIV-Related Risk Among Young Transgender Women: The Role of Multiple, Co-Occurring Health Problems and Social Marginalization [J].
Brennan, Julia ;
Kuhns, Lisa M. ;
Johnson, Amy K. ;
Belzer, Marvin ;
Wilson, Erin C. ;
Garofalo, Robert .
AMERICAN JOURNAL OF PUBLIC HEALTH, 2012, 102 (09) :1751-1757
[8]   Resilience to Discrimination and Rejection Among Young Sexual Minority Males and Transgender Females: A Qualitative Study on Coping With Minority Stress [J].
Bry, Laura Jane ;
Mustanski, Brian ;
Garofalo, Robert ;
Burns, Michelle Nicole .
JOURNAL OF HOMOSEXUALITY, 2018, 65 (11) :1435-1456
[9]   Health Care Experiences of Transgender Adults An Integrated Mixed Research Literature Review [J].
Cicero, Ethan C. ;
Reisner, Sari L. ;
Silva, Susan G. ;
Merwin, Elizabeth I. ;
Humphreys, Janice C. .
ADVANCES IN NURSING SCIENCE, 2019, 42 (02) :123-138
[10]  
Creswell J.W., 2015, Educational Research, V5th