Comprehensive Care for Patients with Sarcoidosis

被引：28
作者：
Moor, Catharina C. [1 ]
Kahlmann, Vivienne [1 ]
Culver, Daniel A. [2 ]
Wijsenbeek, Marlies S. [1 ]
机构：
[1] Erasmus MC, Dept Resp Med, NL-3015 GD Rotterdam, Netherlands
[2] Cleveland Clin, Resp Inst, Dept Pulm Med, Cleveland, OH 44195 USA
来源：
JOURNAL OF CLINICAL MEDICINE | 2020年 / 9卷 / 02期
关键词：
sarcoidosis; quality of life; comprehensive care; holistic management; QUALITY-OF-LIFE; INTERSTITIAL LUNG-DISEASE; SMALL FIBER NEUROPATHY; DOUBLE-BLIND; PULMONARY SARCOIDOSIS; PHYSICAL-ACTIVITY; RANDOMIZED-TRIAL; FATIGUE; EFFICACY; METHOTREXATE;
D O I：
10.3390/jcm9020390
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
Sarcoidosis is a multisystem granulomatous disease, associated with significant morbidity and impaired quality of life. Treatment is aimed at recovering organ function, reducing symptom burden and improving quality of life. Because of the heterogeneity and variable disease course, a comprehensive, multidisciplinary approach to care is needed. Comprehensive care includes not only pharmacological interventions, but also supportive measures aimed at relieving symptoms and improving quality of life. The purpose of this review is to summarize the most recent knowledge regarding different aspects of care and propose a structured approach to sarcoidosis management.
引用
收藏
页数：14
相关论文
共 106 条
[91]   Sarcoidosis [J].
Valeyre, Dominique ;
Prasse, Antje ;
Nunes, Hilario ;
Uzunhan, Yurdagul ;
Brillet, Pierre-Yves ;
Mueller-Quernheim, Joachim .
LANCET, 2014, 383 (9923) :1155-1167
[92]   Patient perspectives in sarcoidosis [J].
van Helmondt, Sanne J. ;
Polish, Louis B. ;
Judson, Marc A. ;
Grutters, Jan C. .
CURRENT OPINION IN PULMONARY MEDICINE, 2019, 25 (05) :478-483
[93]   Scalp hair cortisol and testosterone levels in patients with sarcoidosis [J].
van Manen, M. J. G. ;
Wester, V. L. ;
van Rossum, E. F. C. ;
van den Toorn, L. M. ;
Dorst, K. Y. ;
de Rijke, Y. B. ;
Wijsenbeek, M. S. .
PLOS ONE, 2019, 14 (06)
[94]   Optimizing quality of life in patients with idiopathic pulmonary fibrosis [J].
van Manen, Mirjam J. G. ;
Geelhoed, J. J. Miranda ;
Tak, Nelleke C. ;
Wijsenbeek, Marlies S. .
THERAPEUTIC ADVANCES IN RESPIRATORY DISEASE, 2017, 11 (03) :157-169
[95]   A conceptual model of health-related quality of life in sarcoidosis [J].
Victorson, David E. ;
Cella, David ;
Grund, Heidi ;
Judson, Marc A. .
QUALITY OF LIFE RESEARCH, 2014, 23 (01) :89-101
[96]  
Voortman M, 2019, LUNG, V197, P155, DOI 10.1007/s00408-019-00206-7
[97]   Quality of Life of Couples Living with Sarcoidosis [J].
Voortman, Mareye ;
Hendriks, Celine M. R. ;
Lodder, Paul ;
Drent, Marjolein ;
De Vries, Jolanda .
RESPIRATION, 2019, 98 (05) :373-382
[98]   Effectiveness of infliximab in refractory FDG PET-positive sarcoidosis [J].
Vorselaars, Adriane D. M. ;
Crommelin, Heleen A. ;
Deneer, Vera H. M. ;
Meek, Bob ;
Claessen, Anke M. E. ;
Keijsers, Ruth G. M. ;
van Moorsel, Coline H. M. ;
Grutters, Jan C. .
EUROPEAN RESPIRATORY JOURNAL, 2015, 46 (01) :175-185
[99]   Methotrexate vs Azathioprine in Second-line Therapy of Sarcoidosis [J].
Vorselaars, Adriane D. M. ;
Wuyts, Wim A. ;
Vorselaars, Veronique M. M. ;
Zanen, Pieter ;
Deneer, Vera H. M. ;
Veltkamp, Marcel ;
Thomeer, Michiel ;
van Moorsel, Coline H. M. ;
Grutters, Jan C. .
CHEST, 2013, 144 (03) :805-812
[100]  
Waverijn G, 2016, Leven met een longziekte in Nederland: cijfers en trends over de zorg-en leefsituatie van mensen met een longziekte
234567891011