Report of the GRAPPA-OMERACT Psoriatic Arthritis Working Group from the GRAPPA 2015 Annual Meeting

被引：23

作者：

Orbai, Ana-Maria ^{[1
]}

Mease, Philip J. ^{[2
,3
]}

de Wit, Maarten ^{[4
]}

Kalyoncu, Umut ^{[1
,5
]}

Campbell, Willemina ^{[6
]}

Tillett, William ^{[7
]}

Eder, Lihi ^{[6
]}

Elmamoun, Musaab ^{[8
,9
]}

FitzGerald, Oliver ^{[8
,9
]}

Gladman, Dafna D. ^{[10
,11
,12
]}

Goel, Niti ^{[13
]}

Gossec, Laure ^{[14
]}

Lindsay, Chris A.

Steinkoenig, Ingrid ^{[15
]}

Helliwell, Philip S. ^{[16
,17
]}

McHugh, Neil J.

Strand, Vibeke ^{[18
]}

Ogdie, Alexis ^{[19
]}

机构：

[1] Johns Hopkins Univ, Div Rheumatol, Baltimore, MD USA

[2] Swedish Med Ctr, Rheumatol Res, Washington, DC USA

[3] Univ Washington, Sch Med, Seattle, WA USA

[4] Vrije Univ Amsterdam Med Ctr, Amsterdam, Netherlands

[5] Hacettepe Univ Ankara, Div Rheumatol, Dept Internal Med, Ankara, Turkey

[6] Toronto Western Hosp, Toronto, ON, Canada

[7] Royal Natl Hosp Rheumat Dis, Bath, Avon, England

[8] St Vincents Univ Hosp, Dept Rheumatol, Dublin, Ireland

[9] Univ Coll Dublin, Conway Inst Biomol Res, Dublin, Ireland

[10] Univ Toronto, Toronto, ON, Canada

[11] Krembil Res Inst, Toronto, ON, Canada

[12] Univ Hlth Network, Psoriat Arthrit Program, Toronto, ON, Canada

[13] Duke Univ, Sch Med, Quintiles, Durham, NC USA

[14] Univ Paris 06, Sorbonne Univ,Dept Rheumatol, Inst Pierre Louis Epidemiol & Sante Publ, GRC UPMC EEMOIS 08,Pitie Salpetriere Hosp,AP HP, Paris, France

[15] Cleveland Clin, Cleveland, OH 44106 USA

[16] Univ Leeds, Leeds, W Yorkshire, England

[17] Bradford Hosp Natl Hlth Serv NHS Fdn Trust, Bradford, W Yorkshire, England

[18] Stanford Univ, Div Immunol, Palo Alto, CA 94304 USA

[19] Univ Penn, Philadelphia, PA 19104 USA

来源：

JOURNAL OF RHEUMATOLOGY | 2016年 / 43卷 / 05期

关键词：

PSORIATIC ARTHRITIS; CORE SET; OUTCOME MEASURES; INTERNATIONAL PATIENT; OUTCOME MEASURES; CORE SET; SYSTEM; VALIDATION; QUALITY; PROMIS; INVOLVEMENT; VALIDITY; FATIGUE;

D O I：

10.3899/jrheum.160116

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

The GRAPPA-OMERACT psoriatic arthritis (PsA) working group is in the process of updating the PsA core domain set to improve and standardize the measurement of PsA outcomes. Work streams comprise literature reviews of domains and outcome measurement instruments, an international qualitative research project with PsA patients to generate domains important to patients, outcome measurement instrument assessment, conduct of domain consensus panels with patients and physicians, and evidence-based selection of instruments. Patient research partners are involved in each of the projects. The working group will present findings and seek endorsement for the new PsA core domain set, outcome measurement set, and research agenda at the OMERACT meeting in May 2016.

引用

页码：965 / 969

页数：5

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