Health status and coping strategies among older parent-carers of adults with intellectual disabilities in an Australian sample

被引:30
作者
Llewellyn, Gwynnyth [2 ]
McConnell, David [1 ]
Gething, Lindsay [2 ]
Cant, Rosemary [2 ]
Kendig, Hal [2 ]
机构
[1] Univ Alberta, Edmonton, AB T6G 2G4, Canada
[2] Univ Sydney, Sydney, NSW 2006, Australia
基金
英国医学研究理事会;
关键词
Family caregiving; Intellectual disability; Caregiver health; Coping strategies; MENTAL-RETARDATION; AGING MOTHERS; FAMILY CARERS; LIFE-COURSE; CHILDREN; ILLNESS; SUPPORT; ADOLESCENTS; CAREGIVERS; FATHERS;
D O I
10.1016/j.ridd.2010.08.003
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background: Older parent-carers in Australia are the subject of increasing policy and practice attention due to concerns about their ongoing ability to care in the light of their own ageing and the ageing of their adult son or daughter. This paper examines health status and the coping strategies of a group of older Australian parents caring for an adult son or daughter with intellectual disabilities. Method: Health status using the SF-12 (Ware, Snow, Kosinski, & Gandek, 1993), caring stress using the CADI (Nolan, Grant, & Keady, 1998), and coping strategies using the CAMI (Nolan et al., 1998) were assessed in 64 older parent-carers of adults with intellectual disabilities. Results: The self-reported health status of this sample of older parent-carers did not differ significantly from Australian population norms, with one exception. That is, the younger parent-carers in the sample (55-64 years) reported significantly poorer mental health. Better health was associated with having a partner, a larger and close support network of family, friends and neighbours, and a lower care-load. Overall, the study participants identified both satisfaction as well as stress associated with caring, a finding that runs counter to the common perception that being a carer is overwhelmingly burdensome. Common sources of stress were feeling helpless or not in control, and poor professional support. Analysis of older parent-carers coping strategies suggests that self-reliance, whether by choice or necessity, was the norm. Conclusions: The health status of older parent-carers may present less cause for concern than anecdotal reports suggest. That said, the strong self-reliance particularly of the older carers presents a challenge to service providers seeking to engage those whose situation appears to warrant support from the service system. (C) 2010 Elsevier Ltd. All rights reserved.
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页码:1176 / 1186
页数:11
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