Living kidney donors' experiences with the health care system

被引:15
作者
Brown, Judith Belle [2 ]
Karley, Mary Lou [1 ]
Boudville, Neil [3 ]
Bullas, Ruth [4 ]
Garg, Amit X. [5 ]
Muirhead, Norman [6 ]
机构
[1] Univ Western Ontario, Sch Social Work, Kings Univ Coll, London, ON N6A 2M3, Canada
[2] Univ Western Ontario, Schulich Sch Med & Dent, Dept Family Med, Ctr Studies Family Med, London, ON N6G 4X8, Canada
[3] Univ Western Australia, Sir Charles Gairdner Hosp, Sch Med & Pharmacol, Perth, WA 6009, Australia
[4] London Hlth Sci Ctr, Div Nephrol, London, ON N6A 5A5, Canada
[5] Univ Western Ontario, Schulich Sch Med & Dent, Kidney Clin Res Unit, London Hlth Sci Ctr, London, ON N6A 4G5, Canada
[6] Univ Western Ontario, Dept Med, Schulich Sch Med & Dent, London Hlth Sci Ctr, London, ON N6A 5A5, Canada
基金
加拿大健康研究院;
关键词
living kidney donors; health care team; social work; health care system;
D O I
10.1300/J010v46n03_03
中图分类号
C916 [社会工作、社会管理、社会规划];
学科分类号
1204 ;
摘要
The purpose of this study was to explore living kidney donors' perceived experiences with the health care system from the period prior to being tested as a potential donor, through to post donation discharge and follow-up. Qualitative methodology, using a phenomenological approach, explored the experiences, feelings, and ideas of 12 purposefully selected living kidney donors' interface with the health care system. Eight men and four women were interviewed four to 29 years post donation. Interviews were audio taped and transcribed verbatim. An iterative and interpretive analysis was conducted. Themes emerging from the data included factors influencing living kidney donors' decision to be tested as potential donors, the importance of emotional support, and humanistic care. This in turn impacted on their experience of: (1) the role of information in the decision-making process; (2) their tolerance of issues related to hospitalization and; (3) their perception of the quality of care: The findings of this study provide suggestions for the role of social work and improvement in the health care system to better address the needs of living kidney donors.
引用
收藏
页码:53 / 68
页数:16
相关论文
共 25 条
[1]  
[Anonymous], PROG TRANSPLANT
[2]   Using reflexivity to optimize teamwork in qualitative research [J].
Barry, CA ;
Britten, N ;
Barber, N ;
Bradley, C ;
Stevenson, F .
QUALITATIVE HEALTH RESEARCH, 1999, 9 (01) :26-44
[3]   Outcome in emotionally related living kidney donor transplantation [J].
Binet, I ;
Bock, AH ;
Vogelbach, P ;
Gasser, T ;
Kiss, A ;
Brunner, F ;
Thiel, G .
NEPHROLOGY DIALYSIS TRANSPLANTATION, 1997, 12 (09) :1940-1948
[4]   The living kidney donation process:: The donor perspective [J].
Cabrer, C ;
Oppenhaimer, F ;
Manyalich, M ;
Paredes, D ;
Navarro, A ;
Trias, E ;
Lacy, A ;
Rodríguez-Villar, C ;
Vilarrodona, A ;
Ruiz, A ;
Gutierrez, R .
TRANSPLANTATION PROCEEDINGS, 2003, 35 (05) :1631-1632
[5]  
Corley M C, 2000, Nephrol Nurs J, V27, P43
[6]  
Crabtree BF, 1999, DOING QUALITATIVE RE
[7]   Kidney donors don't regret -: Follow-up of 370 donors in Stockholm since 1964 [J].
Fehrman-Ekholm, I ;
Brink, B ;
Ericsson, C ;
Elinder, CG ;
Dunér, F ;
Lundgren, G .
TRANSPLANTATION, 2000, 69 (10) :2067-2071
[8]   Live related renal transplantation: Psychological, social, and cultural issues [J].
Franklin, PM ;
Crombie, AK .
TRANSPLANTATION, 2003, 76 (08) :1247-1252
[9]  
GOUGE F, 1990, TRANSPLANT P, V22, P2409
[10]   Remaining experiences of living kidney donors more than 3 yr after early recipient graft loss [J].
Haljamäe, U ;
Nyberg, G ;
Sjöström, B .
CLINICAL TRANSPLANTATION, 2003, 17 (06) :503-510