Promotion of physical activity for adolescents with cystic fibrosis: a qualitative study of UK multi disciplinary cystic fibrosis teams

被引：8

作者：

Denford, S. ^{[1
]}

Mackintosh, K. A. ^{[2
]}

McNarry, M. A. ^{[2
]}

Barker, A. R. ^{[1
]}

Williams, C. A. ^{[1
]}

Williams, Craig ^{[3
]}

Barker, Alan ^{[3
]}

Denford, Sarah ^{[3
]}

Oades, Patrick ^{[4
]}

McNarry, Melitta ^{[5
]}

Mackintosh, Kelly ^{[5
]}

Main, Eleanor ^{[6
]}

Rand, Sarah ^{[6
]}

Bryon, Mandy ^{[7
]}

Wells, Greg ^{[8
]}

Schneidermann, Jane ^{[8
]}

Holland, Anne ^{[9
]}

Eldridge, Bev ^{[9
]}

Cox, Narelle ^{[9
]}

O'Halloran, Paul ^{[9
]}

机构：

[1] Univ Exeter, Childrens Hlth & Exercise Res Ctr, Sport & Hlth Sci, St Lukes Campus, Exeter, Devon, England

[2] Swansea Univ, Appl Sports Sci Technol Exercise & Med Res Ctr A, Bay Campus, Swansea, W Glam, Wales

[3] Univ Exeter, Exeter, Devon, England

[4] Royal Devon & Exeter NHS Fdn Trust, Exeter, Devon, England

[5] Swansea Univ, Swansea, W Glam, Wales

[6] UCL, London, England

[7] Great Ormond St Hosp Sick Children, London, England

[8] Univ Toronto, Hosp Sick Children, Toronto, ON, Canada

[9] La Trobe Univ, Bundoora, Vic, Australia

来源：

PHYSIOTHERAPY | 2020年 / 106卷

关键词：

Cystic fibrosis; Respiratory; Youth; Qualitative; Physical activity; Exercise; EXERCISE; CHILDREN;

D O I：

10.1016/j.physio.2019.01.012

中图分类号：

R49 [康复医学];

学科分类号：

100215 ;

摘要：

Background The Cystic Fibrosis Trust recently published a standards of care document which stated that patients should be given a physical activity (PA) programme based on their motivations, fitness, and willingness to be active. However, there remains much debate regarding the roles and responsibilities for PA promotion, as well as "optimal" recommendations and advice. This study aimed to qualitatively explore cystic fibrosis (CF) multidisciplinary teams (MDTs) advice, recommendations and practices relating to PA promotion for adolescents with CF. Method Semi-structured interviews were conducted with fifteen members of CF MDTs (11 physiotherapists, two dieticians and two paediatricians). Thematic analysis was used to analyse the data. Results Major themes identified were: (1) structure of MDTs, (2) recommendations relating to intensities, durations and types of PA, and (3) use of exercise testing. Participants reported variation between MDTs in terms of who is responsible for promoting and supporting PA, the nature of advice given to patients, and the use of exercise testing. Participants consistently lacked confidence in their own or others' knowledge to provide standardised recommendations to patients and highlighted that PA promotion and support was often overlooked during busy periods. Conclusions Despite its importance, PA support and promotion is not always prioritised. MDTs lack confidence in their ability to promote PA. Standardised advice and training relating to optimal intensities, durations and types of PA would provide a baseline from which to individualise advice to each patient and could increase confidence in PA promotion among MDTs. (C) 2019 Chartered Society of Physiotherapy. Published by Elsevier Ltd. All rights reserved.

引用

页码：111 / 118

页数：8

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