European survey of the level of satisfaction of patients and physicians in the management of epilepsy in general practice

被引:24
作者
Ross, John
Stefan, Hermann [2 ,3 ]
Schaeuble, Barbara [4 ]
Day, Richard
Sander, Josemir W. [1 ]
机构
[1] UCL Inst Neurol, London WC1N 3BG, England
[2] Richard Day Res, Evanston, IL USA
[3] Univ Erlangen Nurnberg, Epilepsiezentrum ZEE, Univ Klinikum, Erlangen, Germany
[4] Johnson & Johnson, Janssen Cilag EMEA, D-41470 Neuss, Germany
关键词
Adverse effects; Antiepileptic drugs; Epilepsy; Quality of life; Survey; Seizure control; QUALITY-OF-LIFE; PATIENTS PERSPECTIVE; ANTIEPILEPTIC DRUGS; PEOPLE; CARE; SEIZURES; STIGMA;
D O I
10.1016/j.yebeh.2010.06.002
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
Many people with epilepsy report treatment-emergent adverse effects (AEs) while on drug therapy despite optimized treatment. We explored the level of treatment satisfaction with current management among people with epilepsy and treating physicians from seven different European countries. There was discordance between patients and physicians: patients would like greater involvement in discussions regarding treatment options and, although generally satisfied with their current medication, saw the need for a more effective balance between seizure control and AEs. Conversely, physicians were less satisfied with current treatments, but were less concerned with AEs. People with epilepsy also wanted to be better educated about epilepsy and its management. Key challenges for the future include improvement in the self-management of epilepsy by patients and more proactive patient-physician interactions. An additional aim is to improve the public's perception of epilepsy so as to remove any associated stigma. (C) 2010 Elsevier Inc. All rights reserved.
引用
收藏
页码:36 / 42
页数:7
相关论文
共 50 条
  • [21] Shared decision making, physicians' explanations, and treatment satisfaction: a cross-sectional survey of prostate cancer patients
    Nakayama, Kazuhiro
    Osaka, Wakako
    Matsubara, Nobuaki
    Takeuchi, Tsutomu
    Toyoda, Mayumi
    Ohtake, Noriyuki
    Uemura, Hiroji
    BMC MEDICAL INFORMATICS AND DECISION MAKING, 2020, 20 (01)
  • [22] Educational needs of physicians (in training) for management of patients with epilepsy
    Asadi-Pooya, Ali A.
    Karimi, Afrooz
    Rahgoshay, Mohammad
    Rostamihosseinkhani, Mahtab
    Nemati, Hamid
    EPILEPSY & BEHAVIOR, 2021, 124
  • [23] Patient satisfaction in the management of mild-to-moderate ulcerative colitis: Results of a Delphi study among patients and physicians
    Casellas, Francesc
    Ginard, Daniel
    Riestra, Sabino
    DIGESTIVE AND LIVER DISEASE, 2016, 48 (10) : 1172 - 1179
  • [24] Use of screening tools to assess comorbidities and adverse events in patients with epilepsy. A European Reference Network for Rare and Complex Epilepsies (EpiCARE) survey
    Henning, Oliver
    Alfstad, Kristin A.
    Landmark, Cecilie Johannessen
    Helmstaedter, Christoph
    Lossius, Morten, I
    Skogan, Annette Holth
    SEIZURE-EUROPEAN JOURNAL OF EPILEPSY, 2022, 101 : 237 - 243
  • [25] Thyroid cancer patients satisfaction at the management outcome: an analysis of the results of a nationwide survey in 485 subjects
    Diez, Juan J.
    Galofre, Juan C.
    BMC HEALTH SERVICES RESEARCH, 2021, 21 (01)
  • [26] Placebo interventions in practice: a questionnaire survey on the attitudes of patients and physicians
    Faessler, Margrit
    Gnadinger, Markus
    Rosemann, Thomas
    Biller-Andorno, Nikola
    BRITISH JOURNAL OF GENERAL PRACTICE, 2011, 61 (583) : 101 - 107
  • [27] Consumer satisfaction with practice nursing: a cross-sectional survey in New Zealand general practice
    Halcomb, Elizabeth
    Davies, Deborah
    Salamonson, Yenna
    AUSTRALIAN JOURNAL OF PRIMARY HEALTH, 2015, 21 (03) : 347 - 353
  • [28] PERSONAL CONTINUITY AND THE CARE OF PATIENTS WITH EPILEPSY IN GENERAL-PRACTICE
    FREEMAN, GK
    RICHARDS, SC
    BRITISH JOURNAL OF GENERAL PRACTICE, 1994, 44 (386) : 395 - 399
  • [29] Knowledge and practice attitudes regarding the relationship between diabetes and periodontitis: a survey among Swiss endocrinologists and general physicians
    Chatzaki, Natalia
    Zekeridou, Alkisti
    Paroz, Elsa
    Gastaldi, Giacomo
    Giannopoulou, Catherine
    BMC PRIMARY CARE, 2023, 24 (01):
  • [30] Patterns of Management of Patients With Dual Disorder (Psychosis) in Italy: A Survey of Psychiatrists and Other Physicians Focusing on Clinical Practice
    Clerici, Massimo
    de Bartolomeis, Andrea
    De Filippis, Sergio
    Ducci, Giuseppe
    Maremmani, Icro
    Martinotti, Giovanni
    Schifano, Fabrizio
    FRONTIERS IN PSYCHIATRY, 2018, 9