A qualitative study on the impact on the grandparent-grandchildren relationship in Huntington's disease

被引:0
作者
Armas Junco, L. [1 ]
Fernandez Hawrylak, M. [1 ]
机构
[1] Univ Burgos, Fac Educ, Dept Ciencias Educ, Area Didact & Org Escolar, Burgos, Spain
来源
MEDICINA DE FAMILIA-SEMERGEN | 2021年 / 47卷 / 05期
关键词
Huntington's disease; Farrnly; Grandparents; Grandchildren; Case study;
D O I
10.1016/j.semerg.2021.01.008
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The objective of the research is twofold: (1) To understand the emotional process of coping with being at risk or being symptomatic of Huntington's disease (HD), and its effect on the relationship between grandparents and grandchildren. (2) To explore the impact on grandparents of the risk or diagnosis of HD in their grandchildren. A qualitative case -study methodology was used. The interview was used as data collection instrument and the genogram as a graphic representation. The consent of the informants was requested, the permission of the Korean Huntington Association of Castilla y Leon is obtained and the favorable Report of the Bioethics Commission of the University of Burgos. Avoidance of open conversation about the presence of HD is observed. The impact of HD on the grandparent -grandchild subsystem in family dynamics is confirmed. Greater knowledge of HD -specific coping strategies is needed in this subsystem. (C) 2021 Sociedad Espanola de Medicos de Atencion Primaria (SEMERGEN). Published by Elsevier Espana, S.L.U. All rights reserved.
引用
收藏
页码:315 / 320
页数:6
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