Patient-Reported Outcomes for Quality of Life in SLE: Essential in Clinical Trials and Ready for Routine Care

被引：17
作者：
Nguyen, Matthew H. [1 ,2 ]
Huang, Frank F. [3 ]
O'Neill, Sean G. [3 ,4 ]
机构：
[1] Liverpool Hosp, Liverpool, NSW 2170, Australia
[2] Univ New South Wales, Fac Med, Sch Med Sci, Pathol Dept, Kensington, NSW 2052, Australia
[3] Royal North Shore Hosp, Rheumatol Dept, St Leonards, NSW 2065, Australia
[4] Univ Sydney, Fac Med & Hlth, Northern Clin Sch, St Leonards, NSW 2065, Australia
来源：
JOURNAL OF CLINICAL MEDICINE | 2021年 / 10卷 / 16期
关键词：
systemic lupus erythematosus; health-related quality of life; patient-reported outcomes; clinical follow-up; outcome measures; SYSTEMIC-LUPUS-ERYTHEMATOSUS; CROSS-CULTURAL VALIDATION; FORM HEALTH SURVEY; IMPACT TRACKER; DOUBLE-BLIND; DISEASE-ACTIVITY; RHEUMATOID-ARTHRITIS; ITALIAN PATIENTS; CHINESE PATIENTS; COMPLETED TOOL;
D O I：
10.3390/jcm10163754
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
Patient-reported outcome (PRO) instruments are widely used to assess quality of life in Systemic Lupus Erythematosus (SLE) research, and there is growing evidence for their use in clinical care. In this review, we evaluate the current evidence for their use in assessing quality of life in SLE in both research and clinical settings and examine the different characteristics of the commonly used PRO tools. There are now several well-validated generic and SLE-specific tools that have demonstrated utility in clinical trials and several tools that complement activity and damage measures in the clinical setting. PRO tools may help overcome physician-patient discordance in SLE and are valuable in the assessment of fibromyalgia and type 2 symptoms such as widespread pain and fatigue. Future work will identify optimal PRO tools for different settings but, despite current limitations, they are ready to be incorporated into patient care.
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页数：17
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