Life Experiences of Mothers of Children with an Intellectual Disability: A Qualitative Study

被引:22
作者
Budak, Merve Inan [1 ]
Kucuk, Leyla [2 ]
Civelek, Hatice Yaprak [3 ]
机构
[1] Istanbul Medeniyet Univ, Fac Hlth Sci, Dept Nursing, Istanbul, Turkey
[2] Istanbul Univ, Dept Mental Hlth & Psychiat Nursing, Florence Nightingale Nursing Fac, TR-34800 Istanbul, Turkey
[3] Istanbul Arel Univ, Dept Sociol, Fac Sci & Letters, Istanbul, Turkey
关键词
Intellectual disability; mother; life experience; qualitative research; PERCEPTIONS; IMPACT;
D O I
10.1080/19315864.2018.1518502
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Introduction: Mothers of intellectually disabled children face several psychological problems. Qualitative studies use a process that can reveal truthful perceptions and help mothers express their emotions about their unique and personal experiences. Method: This study used a qualitative research method design with a hermeneutic approach to examine the life experiences of mothers of children with intellectual disabilities in light of their caregiving experiences. Results: A phenomenological, hermeneutical analysis with an inductive approach was used. The categories of interest were determined to be "impact," "care management," "stigma," "uncertainty," "relations," and "search for meaning." Conclusions: Not all mothers perceive having an intellectually disabled child negatively. Some mothers may not experience any problems providing care to their children. Almost all mothers, however, have concerns for the future and experience significant changes in their family and social relationships.
引用
收藏
页码:301 / 321
页数:21
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