Exploring the use of tablet computer-based electronic data capture system to assess patient reported measures among patients with chronic kidney disease: a pilot study

被引:22
作者
Wong, Dorothy [1 ,2 ]
Cao, Shen [1 ,2 ]
Ford, Heather [1 ,2 ]
Richardson, Candice [1 ,2 ]
Belenko, Dmitri [1 ,2 ]
Tang, Evan [1 ,2 ]
Ugenti, Luca [1 ,2 ]
Warsmann, Eleanor [1 ,2 ]
Sissons, Amanda [1 ,2 ]
Kulandaivelu, Yalinie [1 ,2 ]
Edwards, Nathaniel [1 ,2 ]
Novak, Marta [3 ,4 ]
Li, Madeline [5 ]
Mucsi, Istvan [1 ,2 ,6 ]
机构
[1] Univ Hlth Network, Div Nephrol, Multiorgan Transplant Program, Toronto, ON, Canada
[2] Univ Toronto, Toronto, ON, Canada
[3] Univ Hlth Network, Ctr Mental Hlth, Toronto, ON, Canada
[4] Univ Toronto, Dept Psychiat, Toronto, ON, Canada
[5] Princess Margaret Hosp, Dept Support Care, Toronto, ON, Canada
[6] Toronto Gen Hosp, Univ Hlth Network, Multiorgan Transplant Program, 585 Univ Ave,11 PMB 188, Toronto, ON M5G 2N2, Canada
关键词
Patient reported outcome measures (PROMs); Tablet computers; CKD; Diabetes; Electronic data capture; Self-administered questionnaires; Pilot study; STAGE RENAL-DISEASE; QUALITY-OF-LIFE; SYMPTOM ASSESSMENT SYSTEM; ILLNESS INTRUSIVENESS; TRANSPLANT RECIPIENTS; HEMODIALYSIS-PATIENTS; DEPRESSIVE SYMPTOMS; CLINICAL-OUTCOMES; ATTACHMENT STYLES; FOLLOW-UP;
D O I
10.1186/s12882-017-0771-7
中图分类号
R5 [内科学]; R69 [泌尿科学(泌尿生殖系疾病)];
学科分类号
1002 ; 100201 ;
摘要
Background: Collecting patient reported outcome measures (PROMs) via computer-based electronic data capture system may improve feasibility and facilitate implementation in clinical care. We report our initial experience about the acceptability of touch-screen tablet computer-based, self-administered questionnaires among patients with chronic kidney disease (CKD), including stage 5 CKD treated with renal replacement therapies (RRT) (either dialysis or transplant). Methods: We enrolled a convenience sample of patients with stage 4 and 5 CKD (including patients on dialysis or after kidney transplant) in a single-centre, cross-sectional pilot study. Participants completed validated questionnaires programmed on an electronic data capture system (DADOS, Techna Inc., Toronto) on tablet computers. The primary objective was to evaluate the acceptability and feasibility of using tablet-based electronic data capture in patients with CKD. Descriptive statistics, Fischer's exact test and multivariable logistic regression models were used for data analysis. Results: One hundred and twenty one patients (55% male, mean age (+/- SD) of 58 (+/- 14) years, 49% Caucasian) participated in the study. Ninety-two percent of the respondents indicated that the computer tablet was acceptable and 79% of the participants required no or minimal help for completing the questionnaires. Acceptance of tablets was lower among patients 70 years or older (75% vs. 95%; p = 0.011) and with little previous computer experience (81% vs. 96%; p = 0.05). Furthermore, a greater level of assistance was more frequently required by patients who were older (45% vs. 15%; p = 0.009), had lower level of education (33% vs. 14%; p = 0.027), low health literacy (79% vs. 12%; p = 0.027), and little previous experience with computers (52% vs. 10%; p = 0.027). Conclusions: Tablet computer-based electronic data capture to administer PROMs was acceptable and feasible for most respondents and could therefore be used to systematically assess PROMs among patients with CKD. Special consideration should focus on elderly patients with little previous computer experience, since they may require more assistance with completion.
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页数:10
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