Collecting Race, Ethnicity, and Language Data to Identify and Reduce Health Disparities: Perceptions of Health Plan Enrollees

被引:17
作者
Hasnain-Wynia, Romana [1 ]
Taylor-Clark, Kalahn [2 ]
Anise, Ayodola [2 ]
机构
[1] Northwestern Univ, Feinberg Sch Med, Inst Healthcare Studies, Ctr Healthcare Equ, Chicago, IL 60611 USA
[2] Brookings Inst, Washington, DC 20036 USA
关键词
race/ethnicity data; health plans; disparities; CARE PROVIDERS; ORGANIZATIONS; INFORMATION; ATTITUDES;
D O I
10.1177/1077558710382549
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Collection of race, ethnicity, and primary language data of health plan members is a recognized important step in addressing disparities in health care. The authors conducted six focus groups to examine perceptions of Massachusetts consumers about collection and use of race/ethnicity and language data by health plans, preferences for how and when the data should be collected, and preferences for racial/ethnic categories. Consumers understood the utility of collecting primary language data from members but expressed concerns about the collection of race/ethnicity data. Despite these concerns, they provided suggestions for using the data to improve care. Their preferences for racial/ethnic categories suggested that they wanted a balance between simplicity and reasonable granular detail. Ultimately, consumers wanted to be assured that the information they provided to health plans would be used to improve quality, and they wanted to be able to provide this information without undue burden and with assurances of confidentiality.
引用
收藏
页码:367 / 381
页数:15
相关论文
共 16 条
[1]  
Angeles J., 2007, POLICY ACTION ADDRES
[2]  
[Anonymous], 1997, FED REG, V62, P58
[3]  
[Anonymous], 2008, NAT VOL CONS STAND A
[4]  
[Anonymous], 2008, Nvivo Qualitative Data Analysis Software.
[5]  
[Anonymous], 1967, DISCOV GROUNDED THEO
[6]   Attitudes toward health care providers, collecting information about patients' race, ethnicity, and language [J].
Baker, David W. ;
Hasnain-Wynia, Romana ;
Kandula, Namratha R. ;
Thompson, Jason A. ;
Brown, E. Richard .
MEDICAL CARE, 2007, 45 (11) :1034-1042
[7]   Patients' attitudes toward health care providers collecting information about their race and ethnicity [J].
Baker, DW ;
Cameron, KA ;
Feinglass, J ;
Georgas, P ;
Foster, S ;
Pierce, D ;
Thompson, JA ;
Hasnain-Wynia, R .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2005, 20 (10) :895-900
[8]   Race and trust in the health care system [J].
Boulware, LE ;
Cooper, LA ;
Ratner, LE ;
LaVeist, TA ;
Powe, NR .
PUBLIC HEALTH REPORTS, 2003, 118 (04) :358-365
[9]   Literature review: considerations in undertaking focus group research with culturally and linguistically diverse groups [J].
Halcomb, Elizabeth J. ;
Gholizadeh, Leila ;
DiGiacomo, Michelle ;
Phillips, Jane ;
Davidson, Patricia M. .
JOURNAL OF CLINICAL NURSING, 2007, 16 (06) :1000-1011
[10]   Obtaining data on patient race, ethnicity, and primary language in health care organizations: Current challenges and proposed solutions [J].
Hasnain-Wynia, Romana ;
Baker, David W. .
HEALTH SERVICES RESEARCH, 2006, 41 (04) :1501-1518