BURDEN OF CAREGIVERS OF PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY: RELATIONSHIP TO FUNCTIONAL CAPACITY

被引：1
作者：
Eduardo, Iriana Moraes
de Oliveira, Lorrane Caroline
Martins Ribeiro, Maysa Ferreira [1 ,2 ]
Martins Prudente, Cejane Oliveira [2 ,3 ]
机构：
[1] Pontificia Univ Catolica Goias PUC GO, Goiania, Go, Brazil
[2] Univ Estadual de Goias, Anapolis, Go, Brazil
[3] PUC GO, Goiania, Go, Brazil
来源：
REVISTA DE PESQUISA-CUIDADO E FUNDAMENTAL ONLINE | 2021年 / 13卷
关键词：
Neuromuscular diseases; Duchenne muscular dystrophy; Quality of life; Motor activity; Caregivers; QUALITY-OF-LIFE;
D O I：
10.9789/2175-5361.rpcfo.v13.9302
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
Objective: To relate a functional capacity of patients with Duchenne muscular dystrophy to the burden of their family caregivers. Methods: A cross-sectional study with 35 patients and their family caregivers from a rehabilitation center in Goiania-GO. Were used for the functional evaluation of the Vignos Scale, Motor Function Measure Scale, Barthel Index, Egen Klassification Scale and for burden evaluation the Burden Interview. Results: The caregivers had moderate burden, with a mean of 23,6 (+/- 10,3). Regarding the patients, the average score of the instruments showed that they were in an advanced stage of disease staging and impairment of functional capacity. No significant relationship was found between the caregiver burden and the patient's functional capacity. Conclusion: The caregiver is directly connected to the care function of the patient, so the multiprofessional team needs to pay attention to their mental health, offering support for specialized interventions.
引用
收藏
页码：547 / 552
页数：6
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