A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners

被引:14
作者
Halstead, Elizabeth J. [1 ]
Leavitt, Victoria M. [2 ]
Fiore, Damian [3 ]
Mueser, Kim T. [4 ]
机构
[1] Healios LLC, Basel, Switzerland
[2] Columbia Univ, Irving Med Ctr, Translat Cognit Neurosci Lab, New York, NY USA
[3] Genentech Inc, San Francisco, CA USA
[4] Boston Univ, Ctr Psychiat Rehabil, Boston, MA 02215 USA
关键词
Multiple sclerosis; quality of life; resilience; caregiver; support; telehealth; intervention; INTERVENTIONS; DEPRESSION; ANXIETY; PEOPLE; FAMILY;
D O I
10.1177/2055217320941250
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Background: Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-building dyadic program for persons with MS (PwMS) and their support partners. Objectives: To evaluate the feasibility of the resilience intervention. The secondary objective was to assess the benefits of the intervention. Methods: Sixty-two participants (M = 49.5 years, 31 dyads of PwMS) and support partners) were recruited to participate. Out of the 31 dyads, 26 were spouses, 2 were cohabiting partners, and 3 were parent-child dyads. Results: The feasibility goals of the intervention were met, as determined by high participant satisfaction and acceptable completion rates. Preliminary outcomes relating to resilience were positive, suggesting that this intervention had a positive impact on participants. Conclusions: To the best of our knowledge, this is the first resilience-building intervention delivered via telehealth for both PwMS and their support partners. The study showed an increase in resilience-building skills for addressing the challenges faced by PwMS and their support partners. These skills can be promoted and taught, clinically supported by telehealth, an affordable, accessible healthcare solution.
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页数:11
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