Deaf in one ear: Communication and social challenges of patients with single-sided deafness post-diagnosis

被引:6
作者
Chang, Pamara F. [1 ]
Zhang, Fawen [2 ]
Schaaf, Andrea J. [3 ]
机构
[1] Univ Cincinnati, Dept Commun, 120B McMicken Hall, Cincinnati, OH 45221 USA
[2] Univ Cincinnati, Dept Commun Sci & Disorders, Cincinnati, OH 45221 USA
[3] Michigan State Univ, Dept Commun, E Lansing, MI 48824 USA
关键词
Single-sided deafness; Health and family communication; Multidimensional medical teams; Patient navigation and guidance; HEALTH-CARE; NEEDS; NAVIGATION;
D O I
10.1016/j.pec.2019.10.009
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objective: To understand the communication and social challenges that individuals with SSD face post diagnosis. Methods: Fifty-two single-sided deaf patients from all over the world participated in semi-structured interviews. Interviews were digitally recorded, transcribed verbatim, and coded using a thematic analysis approach. Results: Patients with single sided deafness identified challenges including: increased reliance on family members, decreased sense of autonomy, communication quality changes with family members, information discrepancy across family members and various emotional responses, conflicting information from interactions with multiple medical professionals, and lack of knowledge regarding what to anticipate post diagnosis. Conclusion: This study provides insights into patients' perspectives around single-sided deafness and its challenges, and the various health care approaches (e.g., patient- and family-centered care, third party disability, patient navigation) that could be implemented post diagnosis to decrease negative experiences and outcomes associated with SSD. Practical Implications: This study has practical implications for improving our understanding of what single-sided deaf patients need and for health professionals to offer better care to current and future populations impacted by single-sided deafness. (C) 2019 Elsevier B.V. All rights reserved.
引用
收藏
页码:530 / 536
页数:7
相关论文
共 38 条
  • [1] Alexander J. F., 2011, Clinical handbook of assessing and treating conduct problems in youth
  • [2] The effectiveness of patient navigation to improve healthcare utilization outcomes: A meta-analysis of randomized controlled trials
    Ali-Faisal, Sobia F.
    Colella, Tracey J. F.
    Medina-Jaudesa, Naomi
    Scott, Lisa Benz
    [J]. PATIENT EDUCATION AND COUNSELING, 2017, 100 (03) : 436 - 448
  • [3] American Academy of Audiology, 2015, AM AC AUD CLIN PRACT
  • [4] [Anonymous], 2001, ICF: International Classification of Functioning Disability and Health
  • [5] GENERALIZING TREATMENT EFFECTS OF FUNCTIONAL FAMILY-THERAPY - 3 REPLICATIONS
    BARTON, C
    ALEXANDER, JF
    WALDRON, H
    TURNER, CW
    WARBURTON, J
    [J]. AMERICAN JOURNAL OF FAMILY THERAPY, 1985, 13 (03) : 16 - 26
  • [6] Patient psychological and information needs when the diagnosis is diabetes
    Beeney, LJ
    Bakry, AA
    Dunn, SM
    [J]. PATIENT EDUCATION AND COUNSELING, 1996, 29 (01) : 109 - 116
  • [7] A National Patient Navigator Training Program
    Calhoun, Elizabeth A.
    Whitley, Elizabeth M.
    Esparza, Angelina
    Ness, Elizabeth
    Greene, Amanda
    Garcia, Roland
    Valverde, Patricia A.
    [J]. HEALTH PROMOTION PRACTICE, 2010, 11 (02) : 205 - 215
  • [8] Family-Centered Care: Meeting the Needs of Patients' Families and Helping Families Adapt to Critical Illness
    Davidson, Judy E.
    [J]. CRITICAL CARE NURSE, 2009, 29 (03) : 28 - 34
  • [9] Peer support within a health care context: a concept analysis
    Dennis, CL
    [J]. INTERNATIONAL JOURNAL OF NURSING STUDIES, 2003, 40 (03) : 321 - 332
  • [10] Using navigators to improve care of underserved patients - Current practices and approaches
    Dohan, D
    Schrag, D
    [J]. CANCER, 2005, 104 (04) : 848 - 855