Genetic testing for Huntington's disease: A thematic analysis of online support community messages

被引：9

作者：

Smedley, Richard M. ^{[1
]}

Coulson, Neil S. ^{[1
]}

机构：

[1] Univ Nottingham, Nottingham, England

来源：

JOURNAL OF HEALTH PSYCHOLOGY | 2021年 / 26卷 / 04期

关键词：

genetic counselling; genetic testing; Huntington’ s disease; online support community; thematic analysis; QUALITATIVE RESEARCH; ETHICAL-ISSUES; HEALTH INFORMATION; PREDICTIVE TEST; SOCIAL SUPPORT; EXPERIENCE; INTERNET; AGE; DIAGNOSIS; UNCERTAINTY;

D O I：

10.1177/1359105319826340

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Huntington's disease is a fatal late-onset genetic illness that causes motor, cognitive and psychiatric disorders. Individuals considering genetic testing may benefit from online social support. This study investigates how genetic testing is discussed within health forums. A total of 337 messages written by 58 individuals were analysed using deductive thematic analysis. Discussions examined three themes: deciding to be tested (enquiring about symptoms and starting a new family), preparing for the test (information seeking and attending appointments) and receiving the results (positive and negative results). Forums can reduce the uncertainty of ambiguous symptoms and provide ongoing personalised support before, during and after a genetic test.

引用

页码：580 / 594

页数：15

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