"Not by Money Alone": Social Support Opportunities in Medical Crowdfunding Campaigns

被引:15
作者
Kim, Jennifer G. [1 ]
Vaccaro, Kristen [1 ]
Karahalios, Karrie [1 ,2 ]
Hong, Hwajung [3 ]
机构
[1] Univ Illinois, Champaign, IL 61820 USA
[2] Adobe Res, San Francisco, CA USA
[3] Ulsan Natl Inst Sci & Technol, Ulsan, South Korea
来源
CSCW'17: PROCEEDINGS OF THE 2017 ACM CONFERENCE ON COMPUTER SUPPORTED COOPERATIVE WORK AND SOCIAL COMPUTING | 2017年
基金
美国国家科学基金会;
关键词
Social Support; Online Financial Support; Medical Crowdfunding;
D O I
10.1145/2998181.2998245
中图分类号
TP39 [计算机的应用];
学科分类号
081203 ; 0835 ;
摘要
Medical crowdfunding helps patients receive financial support from their distributed social networks online. However, little is known about who the patient's supporters are, what support they provide, and why. To address this, we interviewed fifteen people involved in medical crowdfunding, including both beneficiaries and supporters. We found that support networks were larger than beneficiaries expected, with strangers offering support. Supporters offered not only monetary but also volunteering contributions including campaign creation, promotion, and external support. However, the emphasis medical crowdfunding interfaces place on monetary contributions led to social issues. Beneficiaries' close friends felt pressured to donate money they could not afford to give. And beneficiaries promoting the campaign worried they would be judged for requesting money. To mitigate these concerns, we suggest making the variety of volunteering contributions more visible and discuss the design challenges of including such signals in existing systems.
引用
收藏
页码:1997 / 2009
页数:13
相关论文
共 39 条
  • [1] Donor Retention in Online Crowdfunding Communities: A Case Study of DonorsChoose.org
    Althoff, Tim
    Leskovec, Jure
    [J]. PROCEEDINGS OF THE 24TH INTERNATIONAL CONFERENCE ON WORLD WIDE WEB (WWW 2015), 2015, : 34 - 44
  • [2] The Uses and Gratifications of Online Care Pages: A Study of CaringBridge
    Anderson, Isolde K.
    [J]. HEALTH COMMUNICATION, 2011, 26 (06) : 546 - 559
  • [3] [Anonymous], SOCIAL INFLUENCES PR
  • [4] [Anonymous], EC J
  • [5] [Anonymous], 2012, P ACM 2012 C COMPUTE, DOI DOI 10.1145/2145204.2145329
  • [6] [Anonymous], P SOCINFO 2015
  • [7] [Anonymous], P DIS 2014, DOI DOI 10.1145/2559206.2581289
  • [8] [Anonymous], COMPUT SUPPORT COOP
  • [9] [Anonymous], P CHI 2016
  • [10] [Anonymous], 2014, P SIGCHI C HUM FACT, DOI DOI 10.1145/2556288.2557181