The 'F-words' in childhood disability: I swear this is how we should think!

被引:411
作者
Rosenbaum, P. [1 ]
Gorter, J. W. [1 ,2 ]
机构
[1] McMaster Univ, CanChild Ctr Childhood Disabil Res, Hamilton, ON L8S 1C7, Canada
[2] NetChild Network Childhood Disabil Res, Utrecht, Netherlands
关键词
childhood disability; chronic conditions ICF; family; fun; function; CEREBRAL-PALSY; YOUNG-CHILDREN; MOTOR ABILITIES; CAREGIVERS; HEALTH; PARTICIPATION; INTERVENTION; PERFORMANCE; MOBILITY; REHABILITATION;
D O I
10.1111/j.1365-2214.2011.01338.x
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
The 21st century is witnessing a sea change in our thinking about disability. Nowhere are these developments more apparent than in the field of childhood disability, where traditional biomedical concepts are being incorporated into but expanded considerably by new ways of formulating ideas about children, child development, social-ecological forces in the lives of children with chronic conditions and their families, and points of entry for professionals to be helpful. In this paper, we have tried to package a set of ideas, grounded in the World Health Organization's International Classification of Functioning, Disability and Health (the ICF), into a series of what we have called F-words in child neurodisability function, family, fitness, fun, friends and future. We hope this will be an appealing way for people to incorporate these concepts into every aspect of clinical service, research and advocacy regarding disabled children and their families.
引用
收藏
页码:457 / 463
页数:7
相关论文
共 34 条
[1]  
[Anonymous], 1980, International classification of impairments, disabilities, and handicaps
[2]  
Brehaut J. C., 2011, AM J PUBLIC IN PRESS
[3]  
Brehaut Jamie C, 2004, Pediatrics, V114, pe182, DOI 10.1542/peds.114.2.e182
[4]   Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based Study [J].
Brehaut, Jamie C. ;
Kohen, Dafna E. ;
Garner, Rochelle E. ;
Miller, Anton R. ;
Lach, Lucyna M. ;
Klassen, Anne F. ;
Rosenbaum, Peter L. .
AMERICAN JOURNAL OF PUBLIC HEALTH, 2009, 99 (07) :1254-1262
[5]   Cross-cultural validation and psychometric evaluation of the Dutch language version of the Children's Assessment of Participation and Enjoyment (CAPE) in children with and without physical disabilities [J].
Bult, M. K. ;
Verschuren, O. ;
Gorter, J. W. ;
Jongmans, M. J. ;
Piskur, B. ;
Ketelaar, M. .
CLINICAL REHABILITATION, 2010, 24 (09) :843-853
[6]   EFFECTS OF POWERED MOBILITY ON SELF-INITIATED BEHAVIORS OF VERY YOUNG-CHILDREN WITH LOCOMOTOR DISABILITY [J].
BUTLER, C .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 1986, 28 (03) :325-332
[7]   Systematic literature review on ICF from 2001 to 2009: its use, implementation and operationalisation [J].
Cerniauskaite, Milda ;
Quintas, Rui ;
Boldt, Christine ;
Raggi, Alberto ;
Cieza, Alarcos ;
Bickenbach, Jerome Edmond ;
Leonardi, Matilde .
DISABILITY AND REHABILITATION, 2011, 33 (04) :281-309
[8]   A Multivariate Model of Determinants of Change in Gross-Motor Abilities and Engagement in Self-Care and Play of Young Children With Cerebral Palsy [J].
Chiarello, Lisa A. ;
Palisano, Robert J. ;
Bartlett, Doreen J. ;
McCoy, Sarah Westcott .
PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS, 2011, 31 (02) :150-168
[9]   Becoming and staying physically active in adolescents with cerebral palsy: protocol of a qualitative study of facilitators and barriers to physical activity [J].
Claassen, Aniek A. O. M. ;
Gorter, Jan Willem ;
Stewart, Debra ;
Verschuren, Olaf ;
Galuppi, Barbara E. ;
Shimmell, Lorie J. .
BMC PEDIATRICS, 2011, 11
[10]   Context therapy: a new intervention approach for children with cerebral palsy [J].
Darrah, Johanna ;
Law, Mary C. ;
Pollock, Nancy ;
Wilson, Brenda ;
Russell, Dianne J. ;
Walter, Stephen D. ;
Rosenbaum, Peter ;
Galupp, Barb .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2011, 53 (07) :615-620