Involvement in everyday life for people with a life threatening illness

被引:46
作者
Sviden, Gerd Andersson [1 ]
Tham, Kerstin [1 ]
Borell, Lena [1 ,2 ]
机构
[1] Karolinska Inst, Dept Occupat Therapy, S-14183 Huddinge, Sweden
[2] Stokholms Sjukhem Fdn, Dept Res & Dev, Stockholm, Sweden
关键词
Everyday life; Palliative care; Day care; Cancer; Grounded theory; OCCUPATION; CANCER;
D O I
10.1017/S1478951510000143
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective: In many studies, everyday life has been shown to be of great significance in the context of life-threatening cancer. The aim of this study was to investigate how people with cancer who are receiving palliative care engage in and undertake activities in their everyday lives. Method: This is a qualitative interview study adopting a grounded theory approach. The sample was composed of participants receiving services from palliative hospital-based home care and day care services. A total of 47 individuals were interviewed. Results: Despite experiencing the threat of progressive loss of functioning, the participants were striving to remain involved in and to be active in everyday life. Continued involvement in everyday life with lowered expectations concerning performance gave the participants the possibility to continue doing daily activities as well as to perform new and engaging activities that were a source of pleasure and enabled the patients to feel a sense of competence. Significance of results: This study has demonstrated the power of being involved in everyday life activities. The proposed model, explaining individuals' desire to continue to live an active life despite a progressive loss of functioning, can provide a model to help the reasoning of professionals when supporting patients in their everyday life.
引用
收藏
页码:345 / 352
页数:8
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