Impact of secondary health conditions on social role participation for a long-term physical disability cohort

被引:9
作者
Hreha, Kimberly P. [1 ]
Smith, Amanda E. [2 ]
Wong, Jennifer L. [1 ]
Mroz, Tracy M. [1 ]
Fogelberg, Donald J. [1 ]
Molton, Ivan [1 ]
机构
[1] Univ Washington, Dept Rehabil Med, Seattle, WA 98195 USA
[2] Inst Hlth Metr & Evaluat, Dept Future Hlth Scenarios, Seattle, WA USA
关键词
long term physical disability; participation in social roles; secondary health conditions; SPINAL-CORD-INJURY; FUNCTION ITEM BANK; QUALITY-OF-LIFE; MULTIPLE-SCLEROSIS; OLDER-ADULTS; BRIEF PAIN; OUTCOMES; VALIDITY; FATIGUE; PREVALENCE;
D O I
10.1080/13548506.2019.1595684
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
For people living with long-term physical disability (LTPD) social participation may involve managing physical impairments and secondary health conditions (SHCs) that are not due to the pathophysiology of the LTPD diagnosis itself. Prior research found a negative relationship between SHCs and participation in social roles in people with spinal cord injury (SCI). We expand on this research by investigating the influence of SHCs on participation in social roles for people with one of four LTPDs, controlling for co-variates. We (1) evaluated the associations between SHCs and participation in social roles; and (2) determined whether SHCs on individuals' ability to participate in social roles varies by type of diagnosis in those aging with either SCI, muscular sclerosis, muscular dystrophy, or post-polio syndrome. Cross-sectional, secondary data analysis from a return-by-mail survey. N = 1,573. Data were analyzed with multiple linear regressions (hypothesis 1), and then three moderated regressions (hypothesis 2). After controlling for demographics, SHCs were associated with lower ability to participate in social roles and accounted for 48% of the variance (all p's <.001). The relationship between depression and social role participation was moderated by diagnosis, such that depression was more negatively associated with social participation among individuals with SCI (p = .020). Thus, SHC negatively impact participation in social roles.
引用
收藏
页码:1159 / 1170
页数:12
相关论文
共 45 条
[1]   The PROMIS Initiative: Involvement of Rehabilitation Stakeholders in Development and Examples of Applications in Rehabilitation Research [J].
Amtmann, Dagmar ;
Cook, Karon F. ;
Johnson, Kurt L. ;
Cella, David .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2011, 92 (10) :S12-S19
[2]   Anxiety, Depression, and Function in Individuals With Chronic Physical Conditions: A Longitudinal Analysis [J].
Battalio, Samuel L. ;
Glette, Mari ;
Alschuler, Kevin N. ;
Jensen, Mark P. .
REHABILITATION PSYCHOLOGY, 2018, 63 (04) :532-541
[3]   Measuring Participation: The Patient-Reported Outcomes Measurement Information System Experience [J].
Bode, Rita K. ;
Hahn, Elizabeth A. ;
DeVellis, Robert ;
Cella, David .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2010, 91 (09) :S60-S65
[4]   Content validity in the PROMIS social-health domain: a qualitative analysis of focus-group data [J].
Castel, Liana D. ;
Williams, Kelly A. ;
Bosworth, Hayden B. ;
Eisen, Susan V. ;
Hahn, Elizabeth A. ;
Irwin, Debra E. ;
Kelly, Morgen A. R. ;
Morse, Jennifer ;
Stover, Angela ;
DeWalt, Darren A. ;
DeVellis, Robert F. .
QUALITY OF LIFE RESEARCH, 2008, 17 (05) :737-749
[5]   The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008 [J].
Cella, David ;
Riley, William ;
Stone, Arthur ;
Rothrock, Nan ;
Reeve, Bryce ;
Yount, Susan ;
Amtmann, Dagmar ;
Bode, Rita ;
Buysse, Daniel ;
Choi, Seung ;
Cook, Karon ;
DeVellis, Robert ;
DeWalt, Darren ;
Fries, James F. ;
Gershon, Richard ;
Hahn, Elizabeth A. ;
Lai, Jin-Shei ;
Pilkonis, Paul ;
Revicki, Dennis ;
Rose, Matthias ;
Weinfurt, Kevin ;
Hays, Ron .
JOURNAL OF CLINICAL EPIDEMIOLOGY, 2010, 63 (11) :1179-1194
[6]  
Cleeland C. S., 1994, Annals Academy of Medicine Singapore, V23, P129
[7]  
Cobb John, 2014, Top Spinal Cord Inj Rehabil, V20, P277, DOI 10.1310/sci2004-277
[8]   PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions [J].
Cook, Karon F. ;
Jensen, Sally E. ;
Schalet, Benjamin D. ;
Beaumont, Jennifer L. ;
Arntmand, Dagmar ;
Czajkowski, Susan ;
Dewalt, Darren A. ;
Fries, James F. ;
Pilkonis, Paul A. ;
Reeve, Bryce B. ;
Stone, Arthur A. ;
Weinfurt, Kevin P. ;
Cella, David .
JOURNAL OF CLINICAL EPIDEMIOLOGY, 2016, 73 :89-102
[9]  
Del Boca FK, 2000, ADDICTION, V95, pS347
[10]   Longitudinal study of social participation and well-being among persons with spinal cord injury and their partners (pro-WELL) [J].
Fekete, Christine ;
Brinkhof, Martin W. G. ;
Tough, Hannah ;
Siegrist, Johannes .
BMJ OPEN, 2017, 7 (01)