Psychosocial Experiences of Parents of a Child With Imperforate Anus

被引：8

作者：

Nisell, Margret ^{[1
]}

Ojmyr-Joelsson, Maria ^{[2
,3
]}

Frenckner, Bjorn ^{[3
]}

Rydelius, Per-Anders ^{[4
]}

Christensson, Kyllike ^{[5
,6
]}

机构：

[1] Astrid Lindgren Childrens Hosp, Karolinska Inst, Red Cross Univ Coll, Stockholm, Sweden

[2] Astrid Lindgren Childrens Hosp, Karolinska Inst, Bowel Therapy Unit, Stockholm, Sweden

[3] Astrid Lindgren Childrens Hosp, Karolinska Inst, Pediat Surg Unit, Stockholm, Sweden

[4] Astrid Lindgren Childrens Hosp, Karolinska Inst, Child & Adolescent Psychiat Unit, Stockholm, Sweden

[5] Astrid Lindgren Childrens Hosp, Karolinska Inst, Reprod & Perinatal Hlth Care Unit, Stockholm, Sweden

[6] Astrid Lindgren Childrens Hosp, Karolinska Inst, Dept Woman & Child Hlth, Stockholm, Sweden

来源：

JOURNAL FOR SPECIALISTS IN PEDIATRIC NURSING | 2009年 / 14卷 / 04期

关键词：

Children with imperforate anus; nursing; parents; positive experiences; psychosocial; quantitative; qualitative; PSYCHOLOGICAL DISTRESS; POSITIVE CONTRIBUTIONS; FECAL INCONTINENCE; CHRONIC DISEASE; MENTAL-HEALTH; MOTHERS; IMPACT; CONSEQUENCES; DISABILITY; OUTCOMES;

D O I：

10.1111/j.1744-6155.2009.00192.x

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

PURPOSE. This study aims to examine the psychosocial experiences of parents of children with imperforate anus (IA) and to describe their potential positive experiences. DESIGN AND METHODS. Parents of IA children and a comparison group answered a questionnaire, which was analyzed quantitatively and with manifest content analysis. RESULTS. Social relationships and respect for the child's will were more affected among IA mothers. Positive experiences were revealed in relation to the child, the parent, and the family. PRACTICE IMPLICATIONS. Support to parents in caring for a child with IA should be individualized and occasionally undertaken through collaboration with experts from child and adolescent psychiatry.

引用

页码：221 / 229

页数：9

共 50 条

[41] Parents and their cochlear implanted child: questionnaire development to assess parental views and experiences
O'Neill, C
Lutman, ME
Archbold, SM
Gregory, S
Nikolopoulos, TP
INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY, 2004, 68 (02) : 149 - 160
[42] Social Experiences of Turkish Parents Raising a Child With Apert Syndrome: A Qualitative Study
Saydam, Senem Zeytinoglu
Cuculayef, Darina
Dogan, Tugce Nur
Crerand, Canice E.
Ozek, Memet
CLEFT PALATE-CRANIOFACIAL JOURNAL, 2021, 58 (03) : 354 - 361
[43] Parents' experiences of caring for their child in a Paediatric Intensive Care Unit: A literature review
Annuar, W. Solihatul Hafidzah Wan Mohd
Pien, Lee Siew
Makhtar, Aniawanis
ENFERMERIA CLINICA, 2021, 31 : S377 - S380
[44] Parents' Experiences of Caring for a Child With Autism Spectrum Disorder
DePape, Anne-Marie
Lindsay, Sally
QUALITATIVE HEALTH RESEARCH, 2015, 25 (04) : 569 - 583
[45] Experiences of Parents With Caring for Their Child After a Cancer Diagnosis
Flury, Maria
Caflisch, Ueli
Ullmann-Bremi, Andrea
Spichiger, Elisabeth
JOURNAL OF PEDIATRIC ONCOLOGY NURSING, 2011, 28 (03) : 143 - 153
[46] Parents' experiences of having a child with cleft lip and palate
Johansson, B
Ringsberg, KC
JOURNAL OF ADVANCED NURSING, 2004, 47 (02) : 165 - 173
[47] Parents' experiences during and after their child's stay in the paediatric intensive care unit - A qualitative interview study
Jakobsen, Lise
Kristensen, Karina Keller
Laerkner, Eva
INTENSIVE AND CRITICAL CARE NURSING, 2021, 67
[48] Receiving mandated therapeutic services: Experiences of parents involved in the child welfare system
Estefan, Lianne Fuino
Coulter, Martha L.
VandeWeerd, Carla L.
Armstrong, Mary
Gorski, Peter
CHILDREN AND YOUTH SERVICES REVIEW, 2012, 34 (12) : 2353 - 2360
[49] parents' perspectives and experiences of kidney transplantation in children: A qualitative interview study
Walker, Rachael C.
Naicker, Derisha
Kara, Tonya T.
Palmer, Suetonia C.
JOURNAL OF RENAL CARE, 2019, 45 (03) : 193 - 200
[50] Experiences of parents and stakeholders in caring for, and supporting children with special needs in Ghana
Amo-Adjei, Joshua
Essuman, Ruth
Nurzhynska, Anastasiia
Deliege, Antoine
Sharma, Geeta
Iddrisu, Iddi
Nikoi, Charity
PLOS ONE, 2023, 18 (03):

← 1 2 3 4 5 →