Psychosocial Experiences of Parents of a Child With Imperforate Anus

被引：8

作者：

Nisell, Margret ^{[1
]}

Ojmyr-Joelsson, Maria ^{[2
,3
]}

Frenckner, Bjorn ^{[3
]}

Rydelius, Per-Anders ^{[4
]}

Christensson, Kyllike ^{[5
,6
]}

机构：

[1] Astrid Lindgren Childrens Hosp, Karolinska Inst, Red Cross Univ Coll, Stockholm, Sweden

[2] Astrid Lindgren Childrens Hosp, Karolinska Inst, Bowel Therapy Unit, Stockholm, Sweden

[3] Astrid Lindgren Childrens Hosp, Karolinska Inst, Pediat Surg Unit, Stockholm, Sweden

[4] Astrid Lindgren Childrens Hosp, Karolinska Inst, Child & Adolescent Psychiat Unit, Stockholm, Sweden

[5] Astrid Lindgren Childrens Hosp, Karolinska Inst, Reprod & Perinatal Hlth Care Unit, Stockholm, Sweden

[6] Astrid Lindgren Childrens Hosp, Karolinska Inst, Dept Woman & Child Hlth, Stockholm, Sweden

来源：

JOURNAL FOR SPECIALISTS IN PEDIATRIC NURSING | 2009年 / 14卷 / 04期

关键词：

Children with imperforate anus; nursing; parents; positive experiences; psychosocial; quantitative; qualitative; PSYCHOLOGICAL DISTRESS; POSITIVE CONTRIBUTIONS; FECAL INCONTINENCE; CHRONIC DISEASE; MENTAL-HEALTH; MOTHERS; IMPACT; CONSEQUENCES; DISABILITY; OUTCOMES;

D O I：

10.1111/j.1744-6155.2009.00192.x

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

PURPOSE. This study aims to examine the psychosocial experiences of parents of children with imperforate anus (IA) and to describe their potential positive experiences. DESIGN AND METHODS. Parents of IA children and a comparison group answered a questionnaire, which was analyzed quantitatively and with manifest content analysis. RESULTS. Social relationships and respect for the child's will were more affected among IA mothers. Positive experiences were revealed in relation to the child, the parent, and the family. PRACTICE IMPLICATIONS. Support to parents in caring for a child with IA should be individualized and occasionally undertaken through collaboration with experts from child and adolescent psychiatry.

引用

页码：221 / 229

页数：9

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