The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities

被引:62
作者
Hall, Sarah A. [1 ]
Rossetti, Zach [2 ]
机构
[1] Ashland Univ, Dept Inclus Serv & Except Learners, Columbus, OH 43229 USA
[2] Boston Univ, Special Educ Program, Boston, MA 02215 USA
关键词
developmental disabilities; intellectual disabilities; sibling roles; siblings; MULTIPLE DISABILITIES; SUPPORT NEEDS; CHILDREN; FUTURE; INDIVIDUALS; AUTISM; INVOLVEMENT; ADOLESCENTS; PREDICTORS;
D O I
10.1111/jar.12421
中图分类号
G44 [教育心理学];
学科分类号
0402 ; 040202 ;
摘要
BackgroundSiblings of people with intellectual and developmental disabilities (IDD) often assume key roles to support their brothers and sisters. For people with more significant support needs, siblings may undertake additional roles and responsibilities throughout their lives. The purpose of the present study was to identify and describe the roles of adult siblings who have a brother or sister with severe IDD. MethodSeventy-nine adult siblings from 19 to 72years of age completed an online survey with open-ended questions about the roles they play in their relationships with their brother or sister. ResultsThematic analysis resulted in identification of several roles including caregiver, friend (social partner), advocate, legal representative, sibling (teacher/role model), leisure planner and informal service coordinator. ConclusionSiblings assume key roles in the lives of people with IDD and need support from family and professionals to perform these roles.
引用
收藏
页码:423 / 434
页数:12
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