International spinal cord injury musculoskeletal basic data set

被引:19
作者
Biering-Sorensen, F. [1 ,2 ,3 ]
Burns, A. S. [4 ,5 ]
Curt, A. [6 ,7 ]
Harvey, L. A. [8 ]
Mulcahey, M. Jane [9 ]
Nance, P. W. [10 ,11 ]
Sherwood, A. M. [12 ]
Sisto, S. A. [13 ]
机构
[1] Glostrup Cty Hosp, Clin Spinal Cord Injuries, Copenhagen, Denmark
[2] Rigshosp, DK-2100 Copenhagen, Denmark
[3] Univ Copenhagen, Fac Hlth Sci, Copenhagen, Denmark
[4] Univ Toronto, Dept Med, Div Psychiat, Toronto, ON, Canada
[5] Toronto Rehabil Inst, Spinal Cord Rehabil Program, Toronto, ON, Canada
[6] Balgrist Univ Hosp, Spinal Cord Injury Ctr, Zurich, Switzerland
[7] Univ Zurich, Zurich, Switzerland
[8] Univ Sydney, Sydney Sch Med, No Clin Sch, Rehabil Studies Unit, Sydney, NSW 2006, Australia
[9] Shriners Hosp Children, Philadelphia, PA USA
[10] Vet Affairs Long Beach Healthcare Syst, Long Beach, CA USA
[11] Univ Calif Irvine, Orange, CA 92668 USA
[12] Baylor Coll Med, Int Soc Restorat Neurol & Phys Med & Rehabil, Lenoir, NC USA
[13] SUNY Stony Brook, Rehabil Res & Movement Performance RRAMP Lab, Sch Hlth Technol & Management Res & Dev Pk, Div Rehabil Sci, Stony Brook, NY 11794 USA
关键词
spinal cord injury; International Data Set; spasticity; contracture; fracture; scoliosis; HETEROTOPIC OSSIFICATION; SHOULDER PAIN; INTERRATER RELIABILITY; SPASTICITY; SCOLIOSIS; DEFORMITY; CHILDREN; ACHONDROPLASIA; SYRINGOMYELIA; OSTEOPOROSIS;
D O I
10.1038/sc.2012.102
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Objectives: To develop an International Spinal Cord Injury (SCI) Musculoskeletal Basic Data Set as part of the International SCI Data Sets to facilitate consistent collection and reporting of basic musculoskeletal findings in the SCI population. Setting: International. Methods: A first draft of an SCI Musculoskeletal Basic Data Set was developed by an international working group. This was reviewed by many different organizations, societies and individuals over 9 months. Revised versions were created successively. Results: The final version of the International SCI Musculoskeletal Basic Data Set contains questions on neuro-musculoskeletal history before spinal cord lesion; presence of spasticity/spasms; treatment for spasticity within the last 4 weeks; fracture(s) since the spinal cord lesion; heterotopic ossification; contracture; the location of degenerative neuromuscular and skeletal changes due to overuse after SCI; SCI-related neuromuscular scoliosis; the method(s) used to determine the presence of neuromuscular scoliosis; surgical treatment of the scoliosis; other musculoskeletal problems; if any of the musculoskeletal challenges above interfere with activities of daily living. Instructions for data collection and the data collection form are freely available on the International Spinal Cord Society (ISCoS) website (www.iscos.org.uk). Conclusion: The International SCI Musculoskeletal Basic Data Set will facilitate consistent collection and reporting of basic musculoskeletal findings in the SCI population. Spinal Cord (2012) 50, 797-802; doi:10.1038/sc.2012.102; published online 4 September 2012
引用
收藏
页码:797 / 802
页数:6
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