The Omani Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

被引:5
作者
Al-Abrawi, Safiya [1 ]
Al-Mayouf, Sulaiman M. [2 ]
Abdwani, Reem [3 ]
Abdalla, Eiman Ibrahim Abdel Aziz [3 ]
Consolaro, Alessandro [4 ,5 ]
Bovis, Francesca [5 ]
Ruperto, Nicolino [5 ]
机构
[1] Royal Hosp, Dept Child Hlth & Pediat Rheumatol, Muscat, Oman
[2] Alfaisal Univ, King Faisal Specialist Hosp & Res Ctr, Dept Pediat Rheumatol, Riyadh, Saudi Arabia
[3] Sultan Qaboos Univ Hosp, Dept Child Hlth, Muscat, Oman
[4] Univ Genoa, Dipartimento Pediat, Genoa, Italy
[5] Ist Giannina Gaslini, Clin Pediat & Reumatol, Paediat Rheumatol Int Trials Org PRINTO, Via Gaslini 5, I-16147 Genoa, Italy
关键词
Juvenile idiopathic arthritis; Disease status; Functional ability; Health related quality of life; JAMAR; DISABILITY MEASUREMENT TOOL; IDIOPATHIC ARTHRITIS; RHEUMATOID-ARTHRITIS; CHILDREN; SCALES; PARENT;
D O I
10.1007/s00296-018-3965-9
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Omani Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 57 JIA patients (22.8% systemic, 28.1% oligoarticular, 35.1% RF negative polyarthritis, 14.0% other categories) and 85 healthy children, were enrolled in two centres. Notably, none of the enrolled JIA patients is affected with enthesitis-related arthritis or undifferentiated arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Omani Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
引用
收藏
页码:299 / 306
页数:8
相关论文
共 18 条
[1]  
[Anonymous], THE CHQ USERS MANUAL
[2]  
[Anonymous], 1978, Psychometric theory
[3]   Cross-cultural adaptation and psychometric evaluation of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) in 54 languages across 52 countries: review of the general methodology [J].
Bovis, Francesca ;
Consolaro, Alessandro ;
Pistorio, Angela ;
Garrone, Marco ;
Scala, Silvia ;
Patrone, Elisa ;
Rinaldi, Mariangela ;
Villa, Luca ;
Martini, Alberto ;
Ravelli, Angelo ;
Ruperto, Nicolino .
RHEUMATOLOGY INTERNATIONAL, 2018, 38 :5-17
[4]   Seeking insights into the EPidemiology, treatment and Outcome of Childhood Arthritis through a multinational collaborative effort: Introduction of the EPOCA study [J].
Consolaro, Alessandro ;
Ruperto, Nicolino ;
Filocamo, Giovanni ;
Lanni, Stefano ;
Bracciolini, Giulia ;
Garrone, Marco ;
Scala, Silvia ;
Villa, Luca ;
Silvestri, Giuseppe ;
Tani, Daniela ;
Zolesi, Alessandra ;
Martini, Alberto ;
Ravelli, Angelo .
PEDIATRIC RHEUMATOLOGY, 2012, 10
[5]  
Duffy CM, 1997, J RHEUMATOL, V24, P738
[6]   Development and validation of a new short and simple measure of physical function for juvenile idiopathic arthritis [J].
Filocamo, Giovanni ;
Sztainbok, Flavio ;
Cespedes-Cruz, Adriana ;
Magni-Manzoni, Silvia ;
Pistorio, Angela ;
Viola, Stefania ;
Ruperto, Nicolino ;
Buoncompagni, Antonella ;
Loy, Anna ;
Martini, Alberto ;
Ravelli, Angelo .
ARTHRITIS & RHEUMATISM-ARTHRITIS CARE & RESEARCH, 2007, 57 (06) :913-920
[7]   Parent and Child Acceptable Symptom State in Juvenile Idiopathic Arthritis [J].
Filocamo, Giovanni ;
Consolaro, Alessandro ;
Schiappapietra, Benedetta ;
Ruperto, Nicolino ;
Pistorio, Angela ;
Solari, Nicoletta ;
Pederzoli, Silvia ;
Verazza, Sara ;
Martini, Alberto ;
Ravelli, Angelo .
JOURNAL OF RHEUMATOLOGY, 2012, 39 (04) :856-863
[8]   A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The juvenile Arthritis Multidimensional Assessment Report [J].
Filocamo, Giovanni ;
Consolaro, Alessandro ;
Schiappapietra, Benedetta ;
Dalpra, Sara ;
Lattanzi, Bianca ;
Magni-Manzoni, Silvia ;
Ruperto, Nicolino ;
Pistorio, Angela ;
Pederzoli, Silvia ;
Civino, Adele ;
Guseinova, Dinara ;
Masala, Ester ;
Viola, Stefania ;
Martini, Alberto ;
Ravelli, Angelo .
JOURNAL OF RHEUMATOLOGY, 2011, 38 (05) :938-953
[9]   Evaluation of 21-Numbered Circle and 10-Centimeter Horizontal Line Visual Analog Scales for Physician and Parent Subjective Ratings in Juvenile Idiopathic Arthritis [J].
Filocamo, Giovanni ;
Davi, Sergio ;
Pistorio, Angela ;
Bertamino, Marta ;
Ruperto, Nicolino ;
Lattanzi, Bianca ;
Consolaro, Alessandro ;
Magni-Manzoni, Silvia ;
Galasso, Roberta ;
Varnier, Giulia Camilla ;
Martini, Alberto ;
Ravelli, Angelo .
JOURNAL OF RHEUMATOLOGY, 2010, 37 (07) :1534-1541
[10]  
Giannini EH, 1997, ARTHRITIS RHEUM, V40, P1202