Significance of Patient Registries for Dermatological Disorders

被引：10

作者：

de Souza, Mark P. ^{[1
]}

Miller, Vanessa Rangel ^{[2
]}

机构：

[1] Lotus Tissue Repair, Cambridge, MA 02138 USA

[2] Innolyst, Patient Crossrd, San Mateo, CA USA

来源：

JOURNAL OF INVESTIGATIVE DERMATOLOGY | 2012年 / 132卷 / 07期

关键词：

EPIDERMOLYSIS-BULLOSA; DATABASE;

D O I：

10.1038/jid.2012.168

中图分类号：

R75 [皮肤病学与性病学];

学科分类号：

100206 ;

摘要：

Patient registries for dermatological disorders are important sources of data for researchers, clinicians, and patients. The majority of registries are maintained by academic investigators with funding from federal agencies. However, these registries are fragmented and are maintained only as long as federal funding exists. Patient organizations and companies can serve as alternative sources of funding for registries. Journal of Investigative Dermatology (2012) 132, 1749-1752. doi:10.1038/jid.2012.168

引用

页码：1749 / 1752

页数：4

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