Enhancing the Validity of a Quality of Life Measure for Autistic People

被引：158
作者：
McConachie, Helen [1 ,5 ]
Mason, David [1 ]
Parr, Jeremy R. [2 ]
Garland, Deborah [3 ]
Wilson, Colin [4 ]
Rodgers, Jacqui [2 ]
机构：
[1] Newcastle Univ, Inst Hlth & Soc, Newcastle Upon Tyne, Tyne & Wear, England
[2] Newcastle Univ, Inst Neurosci, Newcastle Upon Tyne, Tyne & Wear, England
[3] Natl Autist Soc Resource Ctr, Newcastle Upon Tyne, Tyne & Wear, England
[4] Autism Advocate, Sunderland, England
[5] Newcastle Univ, Inst Hlth & Soc, Sir James Spence Inst Level 3, Royal Victoria Infirm, Newcastle Upon Tyne NE1 4LP, Tyne & Wear, England
来源：
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2018年 / 48卷 / 05期
关键词：
Autism; Quality of life; Public mental health; Measurement properties; CRAIG-HOSPITAL INVENTORY; HIGH-FUNCTIONING ADULTS; SPECTRUM DISORDER; SELF-REPORT; INDIVIDUALS; HEALTH; DISABILITIES; EQUIVALENCE; VALIDATION; VERSION;
D O I：
10.1007/s10803-017-3402-z
中图分类号：
B844 [发展心理学（人类心理学）];
学科分类号：
040202 ;
摘要：
Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.
引用
收藏
页码：1596 / 1611
页数：16
相关论文
共 57 条
  • [1] [Anonymous], 2014, PRACT ASSESS RES EVA, DOI DOI 10.7275/DSEP-4220
  • [2] [Anonymous], AUTISM
  • [3] [Anonymous], 2010, PSYCHO SOCIAL MED
  • [4] [Anonymous], AUT SPECTR DIS DIAGN
  • [5] [Anonymous], AUTISM
  • [6] [Anonymous], MEASURING QUAL UNPUB
  • [7] [Anonymous], PREDICTORS QUA UNPUB
  • [8] [Anonymous], 2013, CALCULATION TEST DIF
  • [9] The Internet Administration Version of the 20-Item Toronto Alexithymia Scale
    Bagby, R. Michael
    Ayearst, Lindsay E.
    Morariu, Raluca A.
    Watters, Carolyn
    Taylor, Graeme J.
    [J]. PSYCHOLOGICAL ASSESSMENT, 2014, 26 (01) : 16 - 22
  • [10] The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype
    Bargiela, Sarah
    Steward, Robyn
    Mandy, William
    [J]. JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2016, 46 (10) : 3281 - 3294
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