Impact of moderate intellectual disability on the dynamics and quality of family life: a qualitative clinical study

被引:0
作者
Viana Tomaz, Rodrigo Victor [1 ]
Santos, Vanessa de Arruda [1 ]
da Silva de Avo, Lucimar Retto [1 ]
Ramos Germano, Carla Maria [1 ]
Melo, Debora Gusmao [1 ]
机构
[1] Univ Fed Sao Carlos, Dept Med, Rod Washington Luis SP-310 Km 235,Campus UFSCar, BR-13565905 Sao Carlos, SP, Brazil
来源
CADERNOS DE SAUDE PUBLICA | 2017年 / 33卷 / 11期
基金
巴西圣保罗研究基金会;
关键词
Intellectual Disability; Family Relations; Qualitative Research; OF-LIFE; YOUNG-CHILDREN; MOTHERS; PEOPLE; HEALTH; PARENTS; EMPLOYMENT; AUTISM; NEEDS; PERSPECTIVES;
D O I
10.1590/0102-311X00096016
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
This qualitative clinical study investigated the impact of moderate intellectual disability on family dynamics and quality of life. The data were collected using individual interviews with 15 mothers of children with intellectual disabilities, as a convenience sample, and examined with categorical thematic content analysis. The results were discussed using a comprehensive and interpretative approach. Analysis of the interviews showed that care for children with intellectual disabilities is centered on the mother, contributing to the change in family relations. Religious coping appeared as a common strategy for adjusting. Children with intellectual disabilities had less access to services and support than they needed in the areas of health, education, and leisure. Financial constraints and difficulties in community living had a negative impact on the quality of family life. Emotional and psychological support for all the family members, and practical and social support, including income distribution and access to adequate services, proved essential for the well-being of children with intellectual disabilities and their families.
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页数:14
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共 63 条
[1]   Family quality of life in Nigeria [J].
Ajuwon, P. M. ;
Brown, I. .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2012, 56 (01) :61-70
[2]   Spiritual/religious coping in patients with epilepsy: Relationship with sociodemographic and clinical aspects and quality of life [J].
Almeida Souza Tedrus, Gloria Maria ;
Fonseca, Lineu Correa ;
Magri, Fabiane De Pietro ;
Magalhaes Mendes, Pedro Henrique .
EPILEPSY & BEHAVIOR, 2013, 28 (03) :386-390
[3]  
[Anonymous], 2014, MANUAL DIAGNOSTICO E
[4]  
[Anonymous], CENS DEM 2010
[5]   Saturation sampling in qualitative health research: theoretical contributions [J].
Barcellos Fontanella, Bruno Jose ;
Ricas, Janete ;
Turato, Egberto Ribeiro .
CADERNOS DE SAUDE PUBLICA, 2008, 24 (01) :17-27
[6]   Sampling in qualitative research: a proposal for procedures to detect theoretical saturation [J].
Barcellos Fontanella, Bruno Jose ;
Luchesi, Bruna Moretti ;
Borges Saidel, Maria Giovana ;
Ricas, Janete ;
Turato, Egberto Ribeiro ;
Melo, Debora Gusmao .
CADERNOS DE SAUDE PUBLICA, 2011, 27 (02) :389-394
[7]  
BARDIN Laurence, 2011, Analise de Conteudo
[8]   Quality of Life and Quality of Support for People with Severe Intellectual Disability and Complex Needs [J].
Beadle-Brown, J. ;
Leigh, J. ;
Whelton, B. ;
Richardson, L. ;
Beecham, J. ;
Baumker, T. ;
Bradshaw, J. .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2016, 29 (05) :409-421
[9]   Relationship between individual quality of life and family quality of life for people with intellectual disability living in Italy [J].
Bertelli, M. ;
Bianco, A. ;
Rossi, M. ;
Scuticchio, D. ;
Brown, I. .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2011, 55 :1136-1150
[10]   Unmet needs of people with developmental and intellectual disability [J].
Bouras, Nick .
CURRENT OPINION IN PSYCHIATRY, 2010, 23 (05) :405-406