共 50 条
Parental stress in pediatric epilepsy after therapy withdrawal
被引:8
|作者:
Operto, Francesca Felicia
[1
,2
]
Mazza, Roberta
[1
]
Pastorino, Grazia Maria Giovanna
[2
,3
]
Campanozzi, Stella
[1
]
Margari, Lucia
[1
]
Coppola, Giangennaro
[2
]
机构:
[1] Univ Bari Aldo Moro, Dept Basic Med Sci Neurosci & Sense Organs, Child Neuropsychiat Unit, Piazza Giulio Cesare 11, Bari, Italy
[2] Univ Salerno, Med Sch, Child & Adolescent Neuropsychiat, Via Giovanni Paolo II,132, Fisciano, SA, Italy
[3] Univ Campania, Dept Mental & Phys Hlth & Prevent Med, Naples, Italy
关键词:
Parental stress;
Pediatric epilepsy;
Therapy withdrawal;
Antiepileptic drug (AED);
VAGUS NERVE-STIMULATION;
REFRACTORY EPILEPSY;
YOUNG-CHILDREN;
IMPACT;
D O I:
10.1016/j.yebeh.2019.03.029
中图分类号:
B84 [心理学];
C [社会科学总论];
Q98 [人类学];
学科分类号:
03 ;
0303 ;
030303 ;
04 ;
0402 ;
摘要:
Objective: The objective of the study was to explore stress levels in the parents of children with idiopathic epilepsy at different time points of the disease, specifically, at the time of diagnosis, during follow-up, and 1 and 2 years after discontinuation of antiepileptic drugs. Methods: Our study included 50 patients between 5 and 14 years of age, who were diagnosed with childhood absence epilepsy or idiopathic focal epilepsy with Rolandic paroxysms. Parents of the participants independently completed the Parenting Stress Index-Short Form at the time of initial diagnosis, and when the children started antiepileptic drugs (Time 0), and at 1 year (Time 1) and 2 years (lime 2) after discontinuation of therapy. Results: At Time 0, parental stress levels were increased, both in mothers and fathers, with average scores in the "clinical range" of the parental distress (PD), dysfunctional parent-child interaction (P-CDI), and total stress (TS) scales. At Time 1, the scores on these scales remained high. At Time 2, a mild reduction in the stress scores was observed in both parents, despite values remaining in the "clinical range" for all the scales. Conclusions: Results suggested that parents of children with epilepsy were not reassured about the child's condition, even after clinical improvement. Parental stress levels remained higher than expected, even 2 years after the discontinuation of therapy and freedom from seizures. This was probably due to concerns with the reappearance of new seizures or a more severe type of epilepsy with the discontinuation of drug(s), and feelings of inadequacy with their parental role(s). (C) 2019 Elsevier Inc. All rights reserved.
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页码:239 / 242
页数:4
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