What Is the Health and Well-Being Burden for Parents Living With a Child With ADHD in the United Kingdom?

被引:19
作者
Peasgood, Tessa [1 ]
Bhardwaj, Anupam [2 ]
Brazier, John E. [1 ]
Biggs, Katie [3 ]
Coghill, David [4 ,5 ]
Daley, David [6 ,7 ]
Cooper, Cindy L. [3 ]
De Silva, Cyril [8 ]
Harpin, Val [9 ]
Hodgkins, Paul [10 ]
Nadkarni, Amulya [11 ]
Setyawan, Juliana [12 ]
Sonuga-Barke, Edmund J. S. [13 ]
机构
[1] Sch Hlth & Related Res ScHARR, Sheffield, S Yorkshire, England
[2] Cambridgeshire & Peterborough NHS Fdn Trust, Cambridge, England
[3] ScHARR, Clin Trials Res Unit CTRU, Sheffield, S Yorkshire, England
[4] Univ Melbourne, Dept Paediat, Melbourne, Vic, Australia
[5] Univ Melbourne, Dept Psychiat, Melbourne, Vic, Australia
[6] Univ Nottingham, Div Psychiat & Appl Psychol, Nottingham, England
[7] Univ Nottingham, Ctr ADHD & Neurodev Disorders Lifespan, Inst Mental Hlth, Nottingham, England
[8] Medway NHS Fdn Trust, Gillingham, Kent, England
[9] Sheffield Childrens NHS Fdn Trust, Sheffield, S Yorkshire, England
[10] Global HEOR & Epidemiol, Wayne, PA USA
[11] Lincolnshire Partnership NHS Fdn Trust, Lincoln, England
[12] Arena Pharmaceut, San Diego, CA USA
[13] Kings Coll London, Inst Psychiat Psychol & Neurosci, London, England
关键词
ADHD; parents; carers; well-being; EQ-5D; Warwick Edinburgh Mental Well-Being Scale (WEMWBS); DEFICIT-HYPERACTIVITY DISORDER; SELF-REPORT SCALE; ADULT ADHD; QUALITY; STRESS; LIFE; PREVALENCE; SYMPTOMS; EUROQOL;
D O I
10.1177/1087054720925899
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Objective:To explore the burden associated with childhood ADHD in a large observational study.Methods:We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status.Results:We found significant negative impacts of childhood ADHD on parents'/carers' hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short-Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income.Conclusion:The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.
引用
收藏
页码:1962 / 1976
页数:15
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