Blogging Through Cancer Young Women's Persistent Problems Shared Online

被引:45
作者
Keim-Malpass, Jessica [1 ]
Baernholdt, Marianne [1 ]
Erickson, Jeanne M. [1 ]
Ropka, Mary E. [2 ]
Schroen, Anneke T. [3 ]
Steeves, Richard H. [1 ]
机构
[1] Univ Virginia, Sch Nursing, Charlottesville, VA 22908 USA
[2] Univ Virginia, Dept Publ Hlth Sci, Charlottesville, VA 22908 USA
[3] Univ Virginia, Dept Surg, Charlottesville, VA 22908 USA
关键词
Adolescent and young adult oncology; Illness blogs; Qualitative methods; LONG-TERM SURVIVORS; QUALITY-OF-LIFE; CHILDHOOD-CANCER; ADULT SURVIVORS; BREAST-CANCER; POSTTRAUMATIC STRESS; FERTILITY; LEUKEMIA; PRESERVATION; ADOLESCENTS;
D O I
10.1097/NCC.0b013e31824eb879
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Background: Many young women have turned to illness blogs to describe their lived experience with cancer. Blogs represent an untapped source of knowledge for researchers and clinicians. Objective: The purpose of this qualitative, exploratory study was to describe the life disruptions caused by cancer among young women, as well as to understand the facilitators and barriers in accessing healthcare services during and after active treatment. Methods: Sixteen Internet illness blogs were analyzed among women, aged between 20 and 39 years, diagnosed with cancer. These blogs were analyzed based on phenomenological qualitative methods and thematic analysis. Results: There were 4 dimensions of persistent problems that were articulated in the narratives of the young women without any relief. They included pain and fatigue, insurance and financial barriers, concerns related to fertility, and symptoms of posttraumatic stress and anxiety. Conclusion: The young women's narratives capture fear, uncertainty, anger, and the debilitating nature of these persistent issues. Many of the women expressed their lingering physical, psychosocial, and emotional problems. Implications for Practice: Online illness narratives are a naturalistic form of inquiry that allows nurses to understand the experience of the patient through their own words and accounts. This study provides a foundation for nursing-based interventions that transcend traditional clinic experiences.
引用
收藏
页码:163 / 172
页数:10
相关论文
共 47 条
[11]   Trauma and personality correlates in long term pediatric cancer survivors [J].
Erickson, SJ ;
Steiner, H .
CHILD PSYCHIATRY & HUMAN DEVELOPMENT, 2001, 31 (03) :195-213
[12]  
Erikson EH, 1994, IDENTITY LIFE CYCLE, P192
[13]  
G Egon G., 1985, Naturalistic inquiry, P416
[14]   Impact of CNS treatment on mood in adult survivors of childhood leukemia: A report from the children's cancer group [J].
Glover, DA ;
Byrne, J ;
Mills, JL ;
Robison, LL ;
Nicholson, HS ;
Meadows, A ;
Zeltzer, LK .
JOURNAL OF CLINICAL ONCOLOGY, 2003, 21 (23) :4395-4401
[15]   A longitudinal investigation of posttraumatic stress disorder in patients with ovarian cancer [J].
Goncalves, Vania ;
Jayson, Gordon ;
Tarrier, Nicholas .
JOURNAL OF PSYCHOSOMATIC RESEARCH, 2011, 70 (05) :422-431
[16]  
Haase Joan E, 2004, J Pediatr Oncol Nurs, V21, P145, DOI 10.1177/1043454204264385
[17]  
Hedstrom Mariann, 2003, J Pediatr Oncol Nurs, V20, P120
[18]   Symptoms of posttraumatic stress in young adult survivors of childhood cancer [J].
Hobbie, WL ;
Stuber, M ;
Meeske, K ;
Wissler, K ;
Rourke, MT ;
Ruccione, K ;
Hinkle, A ;
Kazak, AE .
JOURNAL OF CLINICAL ONCOLOGY, 2000, 18 (24) :4060-4066
[19]   Sleep quality, fatigue and physical activity following a cancer diagnosis [J].
Humpel, N. ;
Iverson, D. C. .
EUROPEAN JOURNAL OF CANCER CARE, 2010, 19 (06) :761-768
[20]   Current Concepts: Preservation of Fertility in Patients with Cancer. [J].
Jeruss, Jacqueline S. ;
Woodruff, Teresa K. .
NEW ENGLAND JOURNAL OF MEDICINE, 2009, 360 (09) :902-911