On the experience of stigma by persons with epilepsy in Sweden and Iran-A comparative study

被引:18
作者
Forsgren, Lars [1 ]
Ghanean, Helia [2 ,3 ]
Jacobsson, Lars [2 ]
Richter, Jorg [4 ]
机构
[1] Umea Univ, Dept Neurol, SE-90187 Umea, Sweden
[2] Umea Univ, Dept Psychiat, SE-90187 Umea, Sweden
[3] Tehran Med Univ, Tehran, Iran
[4] Univ Oslo, Fac Med, N-0316 Oslo, Norway
来源
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY | 2013年 / 22卷 / 09期
关键词
Epilepsy; Internalized stigma; Iran; Perceived stigma; Sweden;
D O I
10.1016/j.seizure.2013.05.016
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Purpose: The aim of this paper is to compare the experience of stigma by persons with epilepsy in Sweden and Iran. Method: An adapted version of the Internalized Stigma of Mental Illness Scale was completed by 130 persons with epilepsy in Tehran and 93 patients at a neurology clinic in Sweden. Results: The Swedish subjects reported a significantly lower level of experienced stigmatization than the Iranian patients, which we think is an effect of a more individualized medical treatment and a longer experience of health education in the Swedish society. Conclusion: Improved seizure control, legislative measures and health education are major contributory factors for stigma reduction in a society as regards epilepsy and probably also other medical conditions. (C) 2013 British Epilepsy Association. Published by Elsevier Ltd. All rights reserved.
引用
收藏
页码:748 / 751
页数:4
相关论文
共 13 条
[1]  
Baker G.A., 1999, Epilepsia, V41, P98, DOI DOI 10.1111/J.1528-1157.2000.TB01512.X
[2]   Population-Based Study of Epilepsy in Cambodia Associated Factors, Measures of Impact, Stigma, Quality of Life, Knowledge-Attitude-Practice, and Treatment Gap [J].
Bhalla, Devender ;
Chea, Kimly ;
Hun, Chamroeun ;
Vannareth, Mey ;
Huc, Pierre ;
Chan, Samleng ;
Sebbag, Robert ;
Gerard, Daniel ;
Dumas, Michel ;
Oum, Sophal ;
Druet-Cabanac, Michel ;
Preux, Pierre-Marie .
PLOS ONE, 2012, 7 (10)
[3]  
Bolhari J, 2002, QUARNIC VERSES MENTA, P22
[4]  
Epilepsi guiden, 2007, SIFO EIS RAPP
[5]   Epilepsy stigma: What do we know and where next? [J].
Fernandes, Paula T. ;
Snape, Dee A. ;
Beran, Roy G. ;
Jacoby, Ann .
EPILEPSY & BEHAVIOR, 2011, 22 (01) :55-62
[6]   Self-perception of stigma in persons with epilepsy in Tehran, Iran [J].
Ghanean, Helia ;
Jacobsson, Lars ;
Nojomy, Marzieh .
EPILEPSY & BEHAVIOR, 2013, 28 (02) :163-167
[7]   Social stigma for adults and children with epilepsy [J].
Jacoby, Ann ;
Austin, Joan K. .
EPILEPSIA, 2007, 48 :6-9
[8]  
McGlone J, 2009, MEASURING PERCEIVED
[9]  
Muhlbauer S., 2002, Journal of the American Psychiatric Nurses Association, V8, P76, DOI DOI 10.1067/MPN.2002.125222
[10]   Psychosocial difficulties in people with epilepsy: A systematic review of literature from 2005 until 2010 [J].
Quintas, Rui ;
Raggi, Alberto ;
Giovannetti, Ambra M. ;
Pagani, Marco ;
Sabariego, Carla ;
Cieza, Alarcos ;
Leonardi, Matilde .
EPILEPSY & BEHAVIOR, 2012, 25 (01) :60-67