Longitudinal changes in health-related quality of life in preschool children with cerebral palsy of different levels of motor severity

被引：9

作者：

Lai, Chih-Jou ^{[1
,2
,3
,4
]}

Chen, Chung-Yao ^{[5
,6
]}

Chen, Chia-Ling ^{[4
,7
]}

Chan, Pei-Ying Sarah ^{[8
,9
]}

Shen, I-Hsuan ^{[7
,8
]}

Wu, Ching-Yi ^{[7
,8
]}

机构：

[1] Taipei Vet Gen Hosp, Dept Phys Med & Rehabil, 201,Sec 2,Shipai Rd, Taipei 11217, Taiwan

[2] Sch Med, 201,Sec 2,Shipai Rd, Taipei 11217, Taiwan

[3] Natl Yang Ming Univ, 155,Sec 2,Linong St, Taipei 112, Taiwan

[4] Chang Gung Univ, Grad Inst Early Intervent, Coll Med, 259 Wen Hwa 1st Rd, Taoyuan 333, Taiwan

[5] Chang Gung Mem Hosp, Dept Phys Med & Rehabil, Keelung, Taiwan

[6] Chang Gung Univ, Coll Med, Sch Med, Taoyuan, Taiwan

[7] Chang Gung Mem Hosp Linkou, Dept Phys Med & Rehabil, 5 Fu Hsing St, Taoyuan 333, Taiwan

[8] Chang Gung Univ, Dept Occupat Therapy, 259 Wen Hwa 1st Rd, Taoyuan 333, Taiwan

[9] Chang Gung Mem Hosp Linkuo, Dept Psychiat, 5 Fu Hsing St, Taoyuan 333, Taiwan

来源：

RESEARCH IN DEVELOPMENTAL DISABILITIES | 2017年 / 61卷

关键词：

Cerebral palsy; Quality of life; Motor severity; Longitudinal study; FUNCTION CLASSIFICATION-SYSTEM; RELIABILITY; INSTRUMENT; STABILITY; TAPQOL;

D O I：

10.1016/j.ridd.2016.11.013

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Background: When setting goals for cerebral palsy (CP) interventions, health-related quality of life (HRQoL) is an important outcome. Aims: To compare longitudinal changes in HRQoL in children with CP of different levels of motor severity. Methods and procedures: Seventy-three children with CP were collected and classified into three groups based on Gross Motor Function Classification System (GMFCS) levels. HRQoL was assessed by parent's proxy of the TNO-AZL Preschool Quality of Life (TAPQOL) at baseline and 6 months later. Outcomes and results: Children with GMFCS level V had a lower total TAPQOL score and scores in all domains than those with level I-IV (p < 0.01), except for the non-motor sub domain of physical functioning at follow-up. With regards to longitudinal changes, the children with GMFCS level V had greater improvements in physical (p = 0.016) and cognitive functioning (p = 0.042), but greater deterioration in emotional functioning (p = 0.008) than those with levels I-II at 6 months of follow-up. Conclusions and implications: Motor severity was associated with TAPQOL scores in all domains and changes in some domains in children with CP. Clinicians should early identify children at risk of a poor HRQoL and plan timely treatment strategies to enhance the HRQoL of children with CP. (c) 2016 The Authors. Published by Elsevier Ltd.

引用

页码：11 / 18

页数：8