What is important in rehabilitation for persons with epilepsy? Experiences from focus group interviews with patients and staff

被引：10
作者：
Wedlund, Ewa Wadhagen [1 ,2 ]
Nilsson, Lena [2 ]
Tomson, Torbjorn [1 ]
Erdner, Anette [3 ]
机构：
[1] Karolinska Inst, Dept Clin Neurosci, Stockholm, Sweden
[2] Stora Skondal Hosp, Dept Neurol Rehabil, S-12885 Skondal, Sweden
[3] Ersta Skondal Univ Coll, Stockholm, Sweden
来源：
EPILEPSY & BEHAVIOR | 2013年 / 28卷 / 03期
关键词：
Epilepsy; Rehabilitation; Adults; Patients' experiences; Focus groups; Content analysis; QUALITATIVE CONTENT-ANALYSIS; CONCEPTUAL DESCRIPTION; WORKING ALLIANCE; EMPLOYMENT; MANAGEMENT; PROGRAM; PEOPLE; HEALTH; MODEL;
D O I：
10.1016/j.yebeh.2013.05.022
中图分类号：
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号：
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要：
This study aimed to identify the issues experienced as essential in rehabilitation for persons with epilepsy. Six focus group interviews were conducted, five groups with patients that had completed comprehensive rehabilitation for persons with epilepsy, in a day-care setting, at the Neurological Rehabilitation Clinic at Stora Skondal Hospital, between 2006 and 2009 (total n = 17) and one group with staff members (n = 5). Using content analysis, two themes emerged: life with epilepsy and rehabilitation experiences. The result emphasizes that rehabilitation for persons with epilepsy should be designed individually, in structure and in content. Encounters between patients were important, as well as the team's attitude in meeting with the patients. Therapeutic working alliance is essential between patients and staff for creating an individual rehabilitation. (C) 2013 Elsevier Inc. All rights reserved.
引用
收藏
页码：347 / 353
页数：7
相关论文
共 50 条
  • [41] Patients’ and professionals’ perspectives on the consideration of patients’ convenient therapy periods as part of personalised rehabilitation: a focus group study with patients and therapists from inpatient neurological rehabilitation
    Mona Dür
    Claudia Wenzel
    Patrick Simon
    Gerhard Tucek
    BMC Health Services Research, 22
  • [42] Staff's views on delivering patient-led therapy during inpatient stroke rehabilitation: a focus group study with lessons for trial fidelity
    Horne, Maria
    Thomas, Nessa
    Vail, Andy
    Selles, Rudd
    McCabe, Candy
    Tyson, Sarah
    TRIALS, 2015, 16
  • [43] Patients' and professionals' perspectives on the consideration of patients' convenient therapy periods as part of personalised rehabilitation: a focus group study with patients and therapists from inpatient neurological rehabilitation
    Duer, Mona
    Wenzel, Claudia
    Simon, Patrick
    Tucek, Gerhard
    BMC HEALTH SERVICES RESEARCH, 2022, 22 (01)
  • [44] SPINAL-INJURY REHABILITATION - DO STAFF AND PATIENTS AGREE ON WHAT THEY ARE TALKING ABOUT
    GLASS, CA
    KRISHNAN, KR
    BINGLEY, JD
    PARAPLEGIA, 1991, 29 (05): : 343 - 349
  • [45] Patients' experience of home and hospital based cardiac rehabilitation: A focus group study
    Jones, Miren I.
    Greenfield, Sheila
    Jolly, Kate
    EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, 2009, 8 (01) : 9 - 17
  • [46] Sick-listed persons’ experiences with taking part in an in-patient occupational rehabilitation program based on Acceptance and Commitment Therapy: a qualitative focus group interview study
    Marit B. Rise
    Sigmund Ø. Gismervik
    Roar Johnsen
    Marius S. Fimland
    BMC Health Services Research, 15
  • [47] Cultural challenges in end-of-life care: reflections from focus groups' interviews with hospice staff in Stockholm
    Ekblad, S
    Marttila, A
    Emilsson, M
    JOURNAL OF ADVANCED NURSING, 2000, 31 (03) : 623 - 630
  • [48] A focus groups study of staff team experiences of providing interdisciplinary rehabilitation for people with dementia and their caregivers—a co-creative journey
    Nina Lindelöf
    Ingeborg Nilsson
    Håkan Littbrand
    Yngve Gustafson
    Birgitta Olofsson
    Anncristine Fjellman-Wiklund
    BMC Geriatrics, 23
  • [49] "Understanding my ALS". Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation
    Madsen, Louise Sofia
    Jeppesen, Jurgen
    Handberg, Charlotte
    DISABILITY AND REHABILITATION, 2019, 41 (12) : 1410 - 1418
  • [50] Experiences of rehabilitation one year after breast cancer diagnosis-A focus group study from the ReScreen randomized controlled trial
    Olsson, Ing-Marie
    Dykes, Charlotta
    Ryden, Lisa
    Olsson-Moeller, Ulrika
    Malmstroem, Marlene
    PLOS ONE, 2025, 20 (02):
12345