Resilience in Carers of People With Young-Onset Alzheimer Disease

被引：11
|
作者：
Kimura, Nathalia R. S. [1 ]
Simoes Neto, Jose Pedro [2 ]
Santos, Raquel Luiza [1 ]
Tourinho Baptista, Maria Alice [1 ]
Portugal, Gloria [1 ]
Johannessen, Aud [3 ,4 ]
Barca, Maria Lage [3 ,5 ]
Engedal, Knut [3 ,5 ]
Laks, Jerson [1 ,6 ]
Rodrigues, Valeska Marinho [1 ]
Dourado, Marcia C. N. [1 ]
机构：
[1] Univ Fed Rio de Janeiro, Inst Psychiat, Ctr Alzheimers Dis & Related Disorders, Rua Manoel Pereira 71, Nova Iguacu, RJ, Brazil
[2] Univ Fed Santa Catarina, Dept Polit Sociol, Florianopolis, SC, Brazil
[3] Norwegian Advisory Unit Aging & Hlth Vestfold Hlt, Tonsberg, Norway
[4] VID Specialized Univ Coll, Oslo, Norway
[5] Oslo Univ Hosp, Dept Geriatr Med, Oslo, Norway
[6] Univ Grande Rio Unigranrio, Postgrad Program Translat Biomed, Duque De Caxias, Brazil
来源：
JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY | 2019年 / 32卷 / 02期
关键词：
resilience; carers; young onset; Alzheimer disease; depression; FAMILY CAREGIVERS; BRAZILIAN VERSION; DEMENTIA; IMPACT; DIAGNOSIS; SCALE; DEPRESSION; PERSONALITY; VALIDATION; STRESS;
D O I：
10.1177/0891988718824039
中图分类号：
R592 [老年病学]; C [社会科学总论];
学科分类号：
03 ; 0303 ; 100203 ;
摘要：
Young-onset Alzheimer disease (YOAD) causes psychological and emotional difficulties for carers. However, even in the face of considerable caregiving demands and burden, some carers are resistant to stress, which may be a sign of resilience. This study investigated whether the clinical symptoms of the person with YOAD might be associated with resilience in their carers. A consecutive series of 43 persons with YOAD and their 43 family caregivers were assessed. The carers showed moderate to high level of resilience, low level of anxiety and depressive symptoms, and moderate level of burden. No relationship was found between resilience and sociodemographic characteristics of both carers and care recipient and with clinical characteristics of persons with YOAD. A linear regression analysis showed that resilience was inversely associated with carers' depressive symptoms. The findings suggest that resilience may mainly be related to carers' mental health.
引用
收藏
页码：59 / 67
页数：9
相关论文
共 50 条
  • [1] Supporting people with young-onset dementia and their family carers better
    Low, Lee-Fay
    INTERNATIONAL JOURNAL OF CARE AND CARING, 2019, 3 (02) : 301 - 304
  • [2] Physical activity for people with young-onset dementia and carers: protocol for a scoping review
    Rodgers, Chloe
    Rogerson, David
    Stevenson, Judy
    Porock, Davina
    SYSTEMATIC REVIEWS, 2018, 7
  • [3] Physical activity for people with young-onset dementia and carers: protocol for a scoping review
    Chloe Rodgers
    David Rogerson
    Judy Stevenson
    Davina Porock
    Systematic Reviews, 7
  • [4] Young-onset Alzheimer dementia: a comparison of Brazilian and Norwegian carers' experiences and needs for assistance
    Dourado, M. C. N.
    Laks, J.
    Kimura, N. R.
    Baptista, M. A. T.
    Barca, M. L.
    Engedal, K.
    Tveit, B.
    Johannessen, A.
    INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2018, 33 (06) : 824 - 831
  • [5] The Relationship Between Decision-Making Capacity and Awareness in People with Young-Onset Alzheimer's Disease
    de Souza, Natalie Aparecida Pereira
    Neto, Jose Pedro Simoes
    Dourado, Marcia Cristina Nascimento
    JOURNAL OF ALZHEIMERS DISEASE, 2024, 101 (02) : 671 - 680
  • [6] Decision-Making Capacity and Awareness in People with Young-Onset Alzheimer<acute accent>s Disease
    Dourado, Marcia
    Belfort, Tatiana
    Nogueira, Marcela
    Souza, Natalie A. P.
    Baptista, Maria Alice
    INTERNATIONAL PSYCHOGERIATRICS, 2024, 36 : 67 - 67
  • [7] Quality of Life in People with Young-Onset Alzheimer's Dementia and Frontotemporal Dementia
    Hvidsten, Lara
    Engedal, Knut
    Selbaek, Geir
    Wyller, Torgeir Bruun
    Bruvik, Froydis
    Kersten, Hege
    DEMENTIA AND GERIATRIC COGNITIVE DISORDERS, 2018, 45 (1-2) : 91 - 104
  • [8] The young-onset Parkinson disease
    Huang, Yinhui
    Chen, Yafang
    Lin, Youyu
    Lin, Zhiqiang
    Yang, Meili
    Zhang, Jinying
    Shi, Qingxiao
    Xu, Mianmian
    MINERVA MEDICA, 2023, 114 (02) : 247 - 249
  • [9] AWARENESS OF DISEASE IN ALZHEIMER'S DISEASE: DIFFERENCES BETWEEN YOUNG-ONSET AND LATE-ONSET DEMENTIA
    Dourado, Marcia
    Baptista, Jose
    INTERNATIONAL PSYCHOGERIATRICS, 2019, 31 : 8 - 8
  • [10] The pattern of social cognition impairment in young-onset and late-onset Alzheimer's disease
    Belfort, Tatiana
    Nogueira, Marcela
    Lacerda, Isabel
    Baptista, Maria Alice
    Brandt, Michelle
    Gaigher, Julia
    de Souza, Natalie
    Rangel, Rogeria
    Nascimento Dourado, Marcia Cristina
    INTERNATIONAL PSYCHOGERIATRICS, 2024, 36 : 146 - 147
12345