Measuring Health-Related Quality of Life With the Parental Opinions of Pediatric Constipation Questionnaire

被引：13

作者：

Silverman, Alan H. ^{[1
]}

Berlin, Kristoffer S. ^{[2
,3
]}

Di Lorenzo, Carlo ^{[4
]}

Nurko, Samuel ^{[5
]}

Kamody, Rebecca C. ^{[2
]}

Ponnambalam, Ananthasekar ^{[6
]}

Mugie, Suzanne ^{[4
]}

Gorges, Christina ^{[1
]}

Sanghavi, Rina ^{[7
]}

Sood, Manu R. ^{[1
]}

机构：

[1] Med Coll Wisconsin, Milwaukee, WI 53226 USA

[2] Univ Memphis, Memphis, TN 38152 USA

[3] Univ Tennessee, Hlth Sci Ctr, Memphis, TN USA

[4] Nationwide Childrens Hosp, Columbus, OH USA

[5] Childrens Hosp Boston, Boston, MA USA

[6] Univ S Alabama, Mobile, AL 36688 USA

[7] UT Southwestern Med Ctr, Dallas, TX USA

来源：

JOURNAL OF PEDIATRIC PSYCHOLOGY | 2015年 / 40卷 / 08期

关键词：

assessment; elimination disorders; encopresis; health-related quality of life; CHILDHOOD CONSTIPATION; PSYCHOLOGICAL DIFFERENCES; MEASUREMENT INVARIANCE; LATENT CLASS; CHILDREN; INVENTORY; STRESS;

D O I：

10.1093/jpepsy/jsv028

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Objectives The purpose of this study was to develop a caregiver-completed constipation condition-specific health-related quality of life (HRQL) instrument. Methods 410 caregivers of children aged 2-18 years completed the Parental Opinions of Pediatric Constipation (POOPC), the PedsQL Generic Core Scales, PedQL Family Impact Module, Pediatric Symptom Checklist, the Functional Disability Inventory, the Pediatric Inventory for Parents, and a demographic questionnaire. Exploratory and confirmatory factor analyses were conducted to assess the psychometric properties of the POOPC. Results Analyses yielded four factors called Parental Burden/Distress, Family Conflict, Difficulties with the Medical Team, and Worry about Social Impact that reflect problems in HRQL secondary to constipation and soiling, which were generally more strongly correlated with similar measures relative to a general measure of youth's psychosocial functioning. Conclusion The POOPC is a psychometrically sound measure, which may be useful to clinicians and researchers identifying domains of treatment needs for children and their families.

引用

页码：814 / 824

页数：11

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