A good death from the perspective of palliative cancer patients

被引:89
作者
Kastbom, Lisa [1 ,2 ,3 ]
Milberg, Anna [4 ,5 ,6 ]
Karlsson, Marit [7 ,8 ]
机构
[1] Linkoping Univ, Primary Hlth Care, Linkoping, Sweden
[2] Linkoping Univ, Dept Med & Hlth Sci, Linkoping, Sweden
[3] Univ Sjukhuset Linkoping, Unit Palliat Care LAH Linkoping, S-58185 Linkoping, Sweden
[4] Linkoping Univ, Dept Social & Welf Studies, Linkoping, Sweden
[5] Vrinnevi Hosp, LAH Norrkoping, Norrkoping, Sweden
[6] Palliat Educ & Res Ctr Cty Ostergotland, Linkoping, Sweden
[7] Linkoping Univ, Dept Clin & Expt Med, Linkoping, Sweden
[8] Linkoping Univ Hosp, LAH Linkoping, Linkoping, Sweden
关键词
Palliative care; Qualitative research; Good death; Attitude to death; End-of-life care; Quality of death; PREFERENCES; LIFE; CARE; END; PERCEPTIONS; FAMILIES; QUALITY; ADULTS;
D O I
10.1007/s00520-016-3483-9
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Although previous research has indicated some recurrent themes and similarities between what patients from different cultures regard as a good death, the concept is complex and there is lack of studies from the Nordic countries. The aim of this study was to explore the perception of a good death in dying cancer patients in Sweden. Interviews were conducted with 66 adult patients with cancer in the palliative phase who were recruited from home care and hospital care. Interviews were analysed using qualitative content analysis. Participants viewed death as a process. A good death was associated with living with the prospect of imminent death, preparing for death and dying comfortably, e.g., dying quickly, with independence, with minimised suffering and with social relations intact. Some were comforted by their belief that death is predetermined. Others felt uneasy as they considered death an end to existence. Past experiences of the death of others influenced participants' views of a good death. Healthcare staff caring for palliative patients should consider asking them to describe what they consider a good death in order to identify goals for care. Exploring patients' personal experience of death and dying can help address their fears as death approaches.
引用
收藏
页码:933 / 939
页数:7
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