La vida normal: living with HIV in Santo Domingo, Dominican Republic

被引:12
作者
Barrington, Clare [1 ]
Kerrigan, Deanna [2 ]
Caceres Urena, Francisco I. [3 ]
Brudney, Karen [4 ]
机构
[1] Univ N Carolina, Gillings Sch Global Publ Hlth, Hlth Behav, Chapel Hill, NC 27599 USA
[2] Johns Hopkins Univ, Bloomberg Sch Publ Hlth, Hlth Behav & Soc, Baltimore, MD USA
[3] Oficina Nacl Estadist, Direcc Censos & Encuestas, Santo Domingo, Dominican Rep
[4] Columbia Univ, Med Ctr, Div Infect Dis, New York, NY USA
关键词
HIV/AIDS; living with HIV; Dominican Republic; chronic; narrative; FEMALE SEX WORKERS; ANTIRETROVIRAL THERAPY; CHRONIC ILLNESS; NORMAL LIFE; STIGMA; HIV/AIDS; NORMALIZATION; PERSPECTIVES; DEPRESSION; EXPERIENCE;
D O I
10.1080/13691058.2017.1323350
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
In this study, we explore how individuals living with HIV in the Dominican Republic strive to live a 'normal' life and the consequences of this pursuit of normalcy. We conducted qualitative in-depth interviews with men (n = 20) and women (n = 20) living with HIV and receiving care at two urban clinics in Santo Domingo. We analysed the data using a combination of narrative analysis and thematic coding. We aimed to identify how fears and/or lived experiences with social rejection and HIV-related stigma and discrimination shaped participants' abilities to maintain social relationships, be economically productive and manage HIV within the context of sexual relationships. Participants used the discourse of una vida normal (a normal life) to frame their response to HIV. This pursuit of normality was driven by the social and economic pressures of living with a chronic condition in a context of HIV-related stigma; trying to keep things 'normal' further added to these pressures. We argue that the normal life discourse fails to recognise the dynamic and complex nature of negotiating this condition and may also create additional burdens for individuals living with HIV that could impact their wellbeing and preventive behaviours.
引用
收藏
页码:40 / 54
页数:15
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