A Smartphone App for Increasing Live Organ Donation

被引:53
作者
Kumar, K. [1 ]
King, E. A. [1 ]
Muzaale, A. D. [1 ]
Konel, J. M. [1 ]
Bramstedt, K. A. [2 ]
Massie, A. B. [1 ,3 ]
Segev, D. L. [1 ,3 ]
Cameron, A. M. [1 ]
机构
[1] Johns Hopkins Univ, Sch Med, Dept Surg, Baltimore, MD 21205 USA
[2] Bond Univ, Sch Med, Gold Coast, Qld, Australia
[3] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Epidemiol, Baltimore, MD USA
关键词
DONOR KIDNEY-TRANSPLANTATION; RANDOMIZED CONTROLLED-TRIAL; EDUCATIONAL INTERVENTION; AFRICAN-AMERICANS; BARRIERS; CANDIDATES; DISEASE; TALK; HOME;
D O I
10.1111/ajt.13961
中图分类号
R61 [外科手术学];
学科分类号
摘要
The incidence of live donor transplantation has declined over the past decade, and waitlisted candidates report substantial barriers to identifying a live donor. Since asking someone to donate feels awkward and unfamiliar, candidates are hesitant to ask directly and may be more comfortable with a passive approach. In collaboration with Facebook leadership (Facebook Inc., Menlo Park, CA), we developed a mobile application-an app-that enables waitlisted candidates to create a Facebook post about their experience with organ failure and their need for a live donor. We conducted a single-center prospective cohort study of 54 adult kidney-only and liver-only waitlisted candidates using the Facebook app. Cox proportional hazards models were used to describe donor referral on behalf of candidates using the app compared with matched controls. The majority of candidates who used the app reported it to be "good" or "excellent" with regard to the installation process (82.9%), readability (88.6%), simplicity (70.6%), clarity (87.5%) and the information provided (85.3%). Compared with controls, candidates using the Facebook app were 2.436.6117.98 times more likely to have a donor come forward on their behalf (p < 0.001). The Facebook app is an easy-to-use instrument that enables waitlisted candidates to passively communicate with their social network about their need for a live donor.
引用
收藏
页码:3548 / 3553
页数:6
相关论文
共 16 条
  • [1] Barriers to living kidney donation identified by eligible candidates with end-stage renal disease
    Barnieh, Lianne
    McLaughlin, Kevin
    Manns, Braden J.
    Klarenbach, Scott
    Yilmaz, Serdar
    Hemmelgarn, Brenda R.
    [J]. NEPHROLOGY DIALYSIS TRANSPLANTATION, 2011, 26 (02) : 732 - 738
  • [2] Effectiveness of Educational and Social Worker Interventions to Activate Patients' Discussion and Pursuit of Preemptive Living Donor Kidney Transplantation: A Randomized Controlled Trial
    Boulware, L. Ebony
    Hill-Briggs, Felicia
    Kraus, Edward S.
    Melancon, J. Keith
    Falcone, Brenda
    Ephraim, Patti L.
    Jaar, Bernard G.
    Gimenez, Luis
    Choi, Michael
    Senga, Mikiko
    Kolotos, Maria
    Lewis-Boyer, LaPricia
    Cook, Courtney
    Light, Laney
    DePasquale, Nicole
    Noletto, Todd
    Powe, Neil R.
    [J]. AMERICAN JOURNAL OF KIDNEY DISEASES, 2013, 61 (03) : 476 - 486
  • [3] Social Media and Organ Donor Registration: The Facebook Effect
    Cameron, A. M.
    Massie, A. B.
    Alexander, C. E.
    Stewart, B.
    Montgomery, R. A.
    Benavides, N. R.
    Fleming, G. D.
    Segev, D. L.
    [J]. AMERICAN JOURNAL OF TRANSPLANTATION, 2013, 13 (08) : 2059 - 2065
  • [4] Identifying potential kidney donors using social networking web sites
    Chang, Alexander
    Anderson, Emily E.
    Turner, Hang T.
    Shoham, David
    Hou, Susan H.
    Grams, Morgan
    [J]. CLINICAL TRANSPLANTATION, 2013, 27 (03) : E320 - E326
  • [5] Feasibility and Acceptability of the TALK Social Worker Intervention to Improve Live Kidney Transplantation
    DePasquale, Nicole
    Hill-Briggs, Felicia
    Darrell, Linda
    Boyer, LaPricia Lewis
    Ephraim, Patti
    Boulware, L. Ebony
    [J]. HEALTH & SOCIAL WORK, 2012, 37 (04) : 234 - 249
  • [6] Live Donor Champion: Finding Live Kidney Donors by Separating the Advocate From the Patient
    Garonzik-Wang, Jacqueline M.
    Berger, Jonathan C.
    Ros, Reside Lorie
    Kucirka, Lauren M.
    Deshpande, Neha A.
    Boyarsky, Brian J.
    Montgomery, Robert A.
    Hall, Erin C.
    James, Nathan T.
    Segev, Dorry L.
    [J]. TRANSPLANTATION, 2012, 93 (11) : 1147 - 1150
  • [7] VFV as a New Effective CYP51 Structure-Derived Drug Candidate for Chagas Disease and Visceral Leishmaniasis
    Lepesheva, Galina I.
    Hargrove, Tatiana Y.
    Rachakonda, Girish
    Wawrzak, Zdzislaw
    Pomel, Sebastien
    Cojean, Sandrine
    Nde, Pius N.
    Nes, W. David
    Locuson, Charles W.
    Calcutt, M. Wade
    Waterman, Michael R.
    Daniels, J. Scott
    Loiseau, Philippe M.
    Villalta, Fernando
    [J]. JOURNAL OF INFECTIOUS DISEASES, 2015, 212 (09) : 1439 - 1448
  • [8] Effective communication of standard errors and confidence intervals
    Louis, Thomas A.
    Zeger, Scott L.
    [J]. BIOSTATISTICS, 2009, 10 (01) : 1 - 2
  • [9] A systematic review of barriers in access to renal transplantation among African Americans in the United States
    Navaneethan, Sankar D.
    Singh, Sonal
    [J]. CLINICAL TRANSPLANTATION, 2006, 20 (06) : 769 - 775
  • [10] Patients' attitudes about living donor transplantation and living donor nephrectomy
    Pradel, FG
    Limcangco, MR
    Mullins, CD
    Bartlett, ST
    [J]. AMERICAN JOURNAL OF KIDNEY DISEASES, 2003, 41 (04) : 849 - 858