Differences between developed and developing countries in paediatric care in haemophilia

被引:17
作者
De Kleijn, P. [8 ]
Odent, T. [1 ]
Berntorp, E. [2 ]
Hilliard, P. [3 ]
Pasta, G. [4 ]
Srivastava, A. [5 ]
Iliescu, A. [6 ]
Mohanty, S. [7 ]
机构
[1] Hop Enfants Malad Assistance Publ Hop Paris, Dept Orthopaed Surg, Paris, France
[2] Malmo Univ Hosp Malmo, Dept Coagulat Disorders, Malmo, Sweden
[3] Hosp Sick Children, Hematol Oncol Clin, Hemophilia Program, Toronto, ON M5G 1X8, Canada
[4] Haemophilia Ctr Angelo Bianchi Bonomi, Dept Orthoped, Milan, Italy
[5] Christian Med Coll & Hosp, Vellore, Tamil Nadu, India
[6] Romania Hemophilia Assoc, Timisoara, Romania
[7] King Edward Mem Hosp, Bombay, Maharashtra, India
[8] UMC, Utrecht, Netherlands
关键词
hemophilia; orthopedic surgery; pediatric care; prophylactic treatment; rehabilitation; ARTHROSCOPIC SYNOVECTOMY; PROPHYLACTIC TREATMENT; JOINT DISEASE; MANAGEMENT; COMPLICATIONS; HEMARTHROSIS; ARTHROPATHY; POPULATION; INHIBITORS; WORLD;
D O I
10.1111/j.1365-2516.2012.02875.x
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
. The aim of this article is to provide an up-to-date overview on paediatric haemophilia care in the world, with emphasis on medical treatment, rehabilitation, and orthopaedic surgery. The reason these specific professions caregivers are included is that over 90% of bleeding episodes in people with haemophilia (PWH) occur within the musculoskeletal system; and of these 80% of bleedings occur in joints.
引用
收藏
页码:94 / 100
页数:7
相关论文
共 47 条
[11]   Tailored prophylaxis in severe hemophilia A: interim results from the first 5 years of the Canadian Hemophilia Primary Prophylaxis Study [J].
Feldman, BM ;
Pai, M ;
Rivard, GE ;
Israels, S ;
Poon, MC ;
Demers, C ;
Robinson, S ;
Luke, KH ;
Wu, JKM ;
Gill, K ;
Lillicrap, D ;
Babyn, P ;
McLimont, M ;
Blanchette, VS .
JOURNAL OF THROMBOSIS AND HAEMOSTASIS, 2006, 4 (06) :1228-1236
[12]   Chemical synoviorthesis with oxytetracycline clorhydrate (Emicine®) in recurrent haemarthrosis [J].
Fernandez-Palazzi, F. ;
Cedeno, M. ;
Maldonado, J. C. ;
Boadas, A. ;
De Saez, A. R. ;
Chacal B., F. ;
De Bosch, N. B. .
HAEMOPHILIA, 2008, 14 (01) :21-24
[13]   Anti-inflammatory effects of continuous passive motion on meniscal fibrocartilage [J].
Ferretti, M ;
Srinivasan, A ;
Deschner, J ;
Gassner, R ;
Baliko, F ;
Piesco, N ;
Salter, R ;
Agarwal, S .
JOURNAL OF ORTHOPAEDIC RESEARCH, 2005, 23 (05) :1165-1171
[14]   Dose and outcome of care in haemophilia - how do we define cost-effectiveness? [J].
Fischer, K ;
Van den Berg, HM ;
Thomas, R ;
Kumar, S ;
Poonnoose, P ;
Viswabandya, A ;
Mathews, V ;
Kavitha, ML ;
Bhattacharji, S ;
Srivastava, A .
HAEMOPHILIA, 2004, 10 :216-220
[15]   Prophylactic treatment for severe haemophilia: comparison of an intermediate-dose to a high-dose regimen [J].
Fischer, K ;
Astermark, J ;
Van der Bom, JG ;
Ljung, R ;
Berntorp, E ;
Grobbee, DE ;
Van den Berg, HM .
HAEMOPHILIA, 2002, 8 (06) :753-760
[16]  
Fischer K, 2001, HAEMOPHILIA, V7, P21
[17]   Epsilon-aminocaproic acid inhibits the activity of factor VIII inhibitors in patients with severe haemophilia A in vivo and in vitro [J].
Ghosh, K ;
Shetty, S ;
Pathare, A ;
Mohanty, D .
ACTA HAEMATOLOGICA, 2000, 103 (02) :67-72
[18]   Management of haemophilia and its complications in developing countries [J].
Ghosh, K .
CLINICAL AND LABORATORY HAEMATOLOGY, 2004, 26 (04) :243-251
[19]  
Ghosh K, 1999, HAEMOPHILIA, V5, P364
[20]   HEMOPHILIA IN THE 1990S - PRINCIPLES OF MANAGEMENT AND IMPROVED ACCESS TO CARE [J].
KASPER, CK ;
MANNUCCI, PM ;
BULYZHENKOV, V ;
BRETTLER, DB ;
CHUANSUMRIT, A ;
HEIJNEN, L ;
ISARANKURA, P ;
KERNOFF, PBA ;
PEAKE, I ;
RICKARD, KA ;
SCHULMAN, S ;
SIBINGA, CTS .
SEMINARS IN THROMBOSIS AND HEMOSTASIS, 1992, 18 (01) :1-10