Multiple sclerosis (MS) is the most common cause of neurological disability of young people. It is estimated that 40 000-60 000 people in the country suffer from MS, and approximately 2000 new cases are diagnosed annually. These are, however, estimated data and require verification by nation-wide research. Results published so far concern only certain regions of Poland. It is also vital to precisely describe the needs of patients in terms of immunomodulating treatment and to perform detailed pharmacoeconomical analysis. In order to estimate basic epidemiological parameters there is a need of creating, in imitation of many other countries, a national register of MS patients which would concentrate all assets concerning MS around this project. The article presented the most important of American and European databases and explained the basis of the Polish register of MS patients, which is already functioning in one of the regions.
机构:
MS Forschungs & Projektentwicklungs gGmbH MSFP, German MS Register German MS Soc, Hannover, GermanyUniv Hosp Cologne, Fac Med, Dept Neurol, Kerpener Str 62, D-50937 Cologne, Germany
Ellenberger, David
Flachenecker, Peter
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Neurol Rehabil Ctr Quellenhof, Bad Wildbad, GermanyUniv Hosp Cologne, Fac Med, Dept Neurol, Kerpener Str 62, D-50937 Cologne, Germany
机构:
MS Forschungs & Projektentwicklungs gGmbH MSFP, German MS Register German MS Soc, Hannover, GermanyUniv Hosp Cologne, Fac Med, Dept Neurol, Kerpener Str 62, D-50937 Cologne, Germany
机构:
Med Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, PolandMed Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, Poland
Rzepka, Michalina
Chmiela, Tomasz
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Med Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, PolandMed Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, Poland
Chmiela, Tomasz
Galus, Weronika
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Med Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, PolandMed Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, Poland
Galus, Weronika
Lasek-Bal, Anetta
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Med Univ Silesia, Fac Hlth Sci Katowice, Dept Neurol, PL-40635 Katowice, PolandMed Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, Poland
Lasek-Bal, Anetta
Krzystanek, Ewa
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Med Univ Silesia, Fac Hlth Sci Katowice, Dept Neurol, PL-40635 Katowice, PolandMed Univ Silesia, Fac Med Sci Katowice, Dept Neurol, PL-40752 Katowice, Poland
机构:
Univ Hosp Catania, Neurol Clin 1, Multiple Sclerosis Ctr Sicilia Reg, Catania, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Patti, F.
Amato, M. P.
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Univ Florence, Dept Neurol, Florence, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Amato, M. P.
Trojano, M.
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Univ Bari, Dept Neurol & Psychiat Sci, Bari, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Trojano, M.
Solaro, C.
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Dept Neurol ASL3 Genovese, Genoa, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Solaro, C.
Pappalardo, A.
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Univ Hosp Catania, Neurol Clin 1, Multiple Sclerosis Ctr Sicilia Reg, Catania, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Pappalardo, A.
Zipoli, V.
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Univ Florence, Dept Neurol, Florence, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Zipoli, V.
Portaccio, E.
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Univ Florence, Dept Neurol, Florence, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Portaccio, E.
Paolicelli, D.
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Univ Bari, Dept Neurol & Psychiat Sci, Bari, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Paolicelli, D.
Paolillo, A.
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Merck KGA, Merck Serono Italy, Darmsdadt, GermanyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Paolillo, A.
Mennini, F. S.
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Univ Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Mennini, F. S.
Marcellusi, A.
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Univ Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Marcellusi, A.
Ricci, C.
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Univ Siena, Dept Physiopathol & Expt Med & Publ Hlth, I-53100 Siena, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy
Ricci, C.
Battaglia, M. A.
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Univ Siena, Dept Physiopathol & Expt Med & Publ Hlth, I-53100 Siena, ItalyUniv Roma Tor Vergata, CHEM, CEIS Sanita, Fac Econ, I-00133 Rome, Italy