Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities

被引：17

作者：

Currie, Genevieve ^{[1
,2
]}

Finlay, Brittany ^{[1
]}

Seth, Ashish ^{[1
]}

Roth, Christiane ^{[1
]}

Elsabbagh, Myada ^{[3
]}

Hudon, Anne ^{[4
]}

Hunt, Matthew ^{[5
]}

Jodoin, Sebastien ^{[6
]}

Lach, Lucyna ^{[7
]}

Lencucha, Raphael ^{[5
]}

Nicholas, David B. ^{[8
]}

Shakako, Keiko ^{[5
]}

Zwicker, Jennifer ^{[1
,9
]}

机构：

[1] Univ Calgary, Sch Publ Policy, Calgary, AB, Canada

[2] Mt Royal Univ, Sch Nursing & Midwifery, Calgary, AB, Canada

[3] McGill Univ, Fac Med, Montreal, PQ, Canada

[4] Univ Montreal, Fac Med, Montreal, PQ, Canada

[5] McGill Univ, Fac Med & Hlth Sci, Sch Phys & Occupat Therapy, Montreal, PQ, Canada

[6] McGill Univ, Fac Law, Montreal, PQ, Canada

[7] McGill Univ, Sch Social Work, Montreal, PQ, Canada

[8] Univ Calgary, Fac Social Work, Calgary, AB, Canada

[9] Univ Calgary, Fac Kinesiol, Calgary, AB, Canada

来源：

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING | 2022年 / 17卷 / 01期

基金：

加拿大健康研究院;

关键词：

Parents; children; youth; mental health; COVID-19; disabilities; SUPPORTING CHILDREN; MEDICAL COMPLEXITY; DISORDERS; INTERVENTIONS; ADOLESCENTS; STRESS; CARE;

D O I：

10.1080/17482631.2022.2136090

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Background The global pandemic and subsequent denials, delays, and disruptions in essential daily activities created significant challenges for children with neurodevelopmental disorders (NDDs) and their parents. Public health restrictions during the COVID-19 pandemic limited access to supports and services required by children with NDDs to maintain their health and well-being. Objective This study sought to understand the impacts of these public health measures and restrictions on mental health from the perspective of parents with children with NDDs to inform pathways for public health policies responsive to the needs of this population. Method Interpretive descriptive design was used to guide data collection and data analysis. Forty caregivers were interviewed about their experience with pandemic restrictions. Findings Generic policy measures contributed to many gaps in families' social support systems and contributed to mental health challenges for children and their parents. Four themes emerged: 1) lack of social networks and activities, 2) lack of access to health and social supports, 3) tension in the family unit, and 4) impact on mental health for children and their parents. Recommendations Emergency preparedness planning requires a disability inclusive approach allocating resources for family supports in the home and community. Families identified supports to minimize further pandemic disruptions and enhance recovery.

引用

页数：18