Experiences of stigma over the lifetime of people with xeroderma pigmentosum: A qualitative interview study in the United Kingdom

被引:17
作者
Anderson, Rebecca [1 ]
Walburn, Jessica [1 ]
Morgan, Myfanwy [1 ]
机构
[1] Kings Coll London, London, England
关键词
adjustment; appearance; chronic illness; dermatology; stigma; STIGMATIZATION;
D O I
10.1177/1359105317714643
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
This study explored experiences of stigma in 25 adults with xeroderma pigmentosum. Analysis of semi-structured interviews revealed the changing nature of stigma over the lifetime. Bullying occurred in childhood, whereas adults were questioned about both their photoprotection and skin damage, often resulting in internalised feelings of stigma. Resilience and rejection of feelings of stigma increased with age and experiences of stigma differed across cultures. Findings indicate a need to develop social skills training to help people reject feelings of stigma. Future research should explore perspectives of families, friends and formal institutions and their potential to cause or reduce feelings of stigma.
引用
收藏
页码:2031 / 2041
页数:11
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