Preferences for support services among adolescents and young adults with cancer or a blood disorder: A discrete choice experiment

被引：28

作者：

Goodall, Stephen ^{[1
]}

King, Madeleine ^{[2
]}

Ewing, Jane ^{[3
]}

Smith, Narelle ^{[3
]}

Kenny, Patricia ^{[1
]}

机构：

[1] Univ Technol Sydney, Ctr Hlth Econ Res & Evaluat, Sydney, NSW 2007, Australia

[2] Univ Technol Sydney, Qual Life Off, Psychooncol Cooperat Res Grp, Sydney, NSW 2007, Australia

[3] Univ Technol Sydney, Dept Math Sci, Sydney, NSW 2007, Australia

来源：

HEALTH POLICY | 2012年 / 107卷 / 2-3期

关键词：

Discrete choice experiment (DCE); Support services; Adolescents; Cancer; Blood disorder; SOCIAL SUPPORT; FUTURE ORIENTATION; ONCOLOGY SERVICES; CHRONIC ILLNESS; CHILDREN; PARENTS; LIFE; DISTRESS; FAMILIES; PEOPLE;

D O I：

10.1016/j.healthpol.2012.07.004

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Background: Life-threatening illnesses in young people are traumatic for patients and their families. Support services can help patients and families deal with various non-medical impacts of diagnosis, disease and treatment. The aim of this study was to determine which types of support are most valued by adolescents and young adults (AYA) with cancer or blood disorders and their families. Method: A discrete choice experiment (DCE). Separate experiments were conducted with AYA and their carers. Results: Completed surveys were returned by 83 patients and 78 carers. AYA preferred emotional support for themselves (either by counsellors and/or peers), emotional support for their family, financial support and assistance returning to school/work over services relating to cultural and spiritual needs. Covariate analysis indicated female AYA were more likely than males to prefer emotional support, while males were more likely to prefer assistance returning to work/school. Carers preferred emotional support for their AYA and assistance returning to school/work. Like AYA, they were indifferent about services relating to cultural and spiritual needs. Conclusion: Providing the types of support services that people prefer should maximise effectiveness. This study suggests that AYA patients require support services that included financial aid, assistance returning to work/study, emotional support for themselves and for their family. (C) 2012 Elsevier Ireland Ltd. All rights reserved.

引用

页码：304 / 311

页数：8

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