Exploring Australian regional cancer patients' experiences of clinical trial participation via telemedicine technology

被引：23

作者：

Lee, Jin Joo ^{[1
,2
]}

Burbury, Kate ^{[3
]}

Underhill, Craig ^{[4
]}

Harris, Samuel ^{[5
]}

Shackleton, Kylie ^{[3
]}

McBurnie, Jacquiline ^{[4
]}

McPhee, Narelle ^{[5
]}

Osmond, Felicity ^{[5
]}

Wilkins, Kathleen ^{[2
]}

Baden, Paul ^{[2
]}

Krishnasamy, Meinir ^{[1
,2
,3
]}

机构：

[1] Univ Melbourne, Dept Nursing, Melbourne, Vic, Australia

[2] Victorian Comprehens Canc Ctr, Melbourne, Vic, Australia

[3] Peter MacCallum Canc Ctr, 305 Grattan St, Melbourne, Vic 3000, Australia

[4] Border Med Oncol, East Albury, Australia

[5] Bendigo Hlth, Bendigo, Australia

来源：

JOURNAL OF TELEMEDICINE AND TELECARE | 2022年 / 28卷 / 07期

关键词：

Teletrial; clinical trial; regional patient; patient-experience; teleoncology; equity of access; TELEONCOLOGY; BARRIERS; CARE;

D O I：

10.1177/1357633X20950180

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Introduction Regional cancer patients face various barriers in accessing specialist cancer services. Teletrials are a new model of care that utilise telemedicine technology to enable access to and participation in clinical trials close to home. The present study aimed to explore the experiences of regional cancer patients and their carers while participating in a teletrial, and those of regional patients who travelled to a metropolitan centre for trial participation. Methods A concurrent, mixed methods study design was used to address the study aim. Patient quality of life data were gathered for both groups and an audio-recorded semi-structured interview undertaken to explore patients' and carers' experiences of the two modes of trial participation. Greater weighting was given to the qualitative data. Results Participants described teletrials as an acceptable and valuable initiative that reduced overall burden of trial participation. Irrespective of mode of delivery, patients and carers identified access to trials and specialist cancer services as an important equity issue for regional cancer patients. Discussion From the perspective of regional cancer patients and carers, a teletrial offers convenient, acceptable access to a clinical trial. Although not all patients may want to engage in a teletrial, patients and carers agree that it offers equity of opportunity for trial participation, irrespective of where people live.

引用

页码：508 / 516

页数：9

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