Sharing Research Data to Improve Public Health: A Funder Perspective

被引:24
作者
Carr, David [1 ]
Littler, Katherine [1 ]
机构
[1] Wellcome Trust Res Labs, London NW1 2BE, England
关键词
biomedical research ethics; data sharing; data release; research data; research governance; low income countries; clinical research; health policy;
D O I
10.1177/1556264615593485
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Through the Public Health Research Data Forum, global health research funders are working together to increase the availability of public health and epidemiology research data in ways that are equitable, ethical, and efficient. The Wellcome Trust funded the research reported in this special edition as a first step toward building an evidence base on the perspectives of research stakeholders in low- and middle-income countries on the benefits and challenges of sharing health research data. We hope this work will make a key contribution to discussions aimed at creating policy frameworks for data access at local, national, and regional levels that are sensitive to different contexts and ensure the benefits to research and health are realized in an equitable manner.
引用
收藏
页码:314 / 316
页数:3
相关论文
共 7 条
[1]  
[Anonymous], ENABLING CITATION DA
[2]   Sharing health data: good intentions are not enough [J].
Pisani, Elizabeth ;
AbouZahr, Carla .
BULLETIN OF THE WORLD HEALTH ORGANIZATION, 2010, 88 (06) :462-466
[3]  
Public Health Research Data Forum, 2014, ENH DISC PUBL HLTH E
[4]  
Public Health Research Data Forum, 2015, EN DAT LINK MAX VAL
[5]  
van Panhuis WG, 2014, BMC PUBLIC HEALTH, P14
[6]   Sharing research data to improve public health [J].
Walport, Mark ;
Brest, Paul .
LANCET, 2011, 377 (9765) :537-539
[7]  
Wykstra S, 2013, DATA ACCESS POLICIES