Challenges of Females with Autism: A Parental Perspective

被引:29
作者
Mademtzi, Marilena [1 ]
Singh, Pavita [2 ]
Shic, Fred [3 ]
Koenig, Kathy [1 ]
机构
[1] Yale Univ, Sch Med, Ctr Child Study, 230 South Frontage,Room G70, New Haven, CT 06510 USA
[2] Yale Univ, Sch Publ Hlth, New Haven, CT USA
[3] Univ Washington, Seattle Childrens Hosp, Seattle, WA 98195 USA
关键词
Autism Spectrum Disorders; Autism; Females; Girls; Parents; Focus group; SPECTRUM DISORDERS; SEX-DIFFERENCES; FUNCTIONING AUTISM; ADULTS; GIRLS; CHILDREN; SEXUALITY; GENDER; SCHOOL; BOYS;
D O I
10.1007/s10803-017-3341-8
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents' perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4-29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7-10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability.
引用
收藏
页码:1301 / 1310
页数:10
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