What constitutesfairshared decision-making in global health research collaborations?

被引:4
作者
Pratt, Bridget [1 ]
机构
[1] Univ Melbourne, Sch Populat & Global Hlth, Ctr Hlth Equ, Carlton, Vic, Australia
基金
澳大利亚研究理事会;
关键词
collaboration; ethics; fairness; global health research; partnership; shared decision-making; PARTNERSHIPS;
D O I
10.1111/bioe.12793
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Funders (located primarily in high-income countries) and high-income country researchers have historically dominated decision-making within global health research collaborations: from setting agendas and research design to determining how data are collected and analysed and what happens with findings and outputs. The ethical principle ofshared decision-makinghas been proposed as a way to help address these imbalances within collaborations and to reduce semicolonial and exploitative forms of global health research. It is important to be clear about what shared decision-making means in order to ensure that it is not done in a tokenistic, shallow way. Thus far, the principle's content has not been examined and articulated in detail. This paper aims to start the process of delineating a concept offairshared decision-making as a minimum standard for global health research. Using two hypothetical case examples, the paper will demonstrate that global health research practice is often inconsistent with ideal shared decision-making. In such instances, it can be difficult to decide whether shared decision-making within collaborations is fair. The paper describes how the two cases do not meet criteria for unfair or non-ideal shared decision-making, despite having potentially morally troubling features. The nuances of these examples of research practice help to generate clearer ideas about how to judge fairness in shared decision-making. The paper concludes by presenting ideas about when soft power can be fairly employed between high-income-country and low- and middle-income-country partners and what fair compromise agreements may look like in shared decision-making.
引用
收藏
页码:984 / 993
页数:10
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