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Study protocol: rehabilitation including social and physical activity and education in children and teenagers with cancer (RESPECT)
被引:28
作者:
Thorsteinsson, Troels
[1
]
Helms, Anne Sofie
[1
,2
]
Adamsen, Lis
[3
,4
]
Andersen, Lars Bo
[5
]
Andersen, Karen Vitting
[1
]
Christensen, Karl Bang
[6
]
Hasle, Henrik
[7
]
Heilmann, Carsten
[1
]
Hejgaard, Nete
[1
,8
]
Johansen, Christoffer
[9
,10
]
Madsen, Marianne
[1
]
Madsen, Svend Aage
[1
]
Simovska, Venka
[11
]
Strange, Birgit
[12
]
Thing, Lone Friis
[13
]
Wehner, Peder Skov
[14
]
Schmiegelow, Kjeld
[1
,2
]
Larsen, Hanne Baekgaard
[1
]
机构:
[1] Rigshosp, Copenhagen Univ Hosp, Dept Pediat & Adolescent Med, DK-2100 Copenhagen O, Denmark
[2] Univ Copenhagen, Fac Hlth Sci, DK-2100 Copenhagen, Denmark
[3] Rigshosp, Copenhagen Univ Hosp, Univ Hosp Ctr Nursing & Care Res UCSF, Dept Publ Hlth, DK-2200 Copenhagen, Denmark
[4] Rigshosp, Copenhagen Univ Hosp, Univ Hosp Ctr Nursing & Care Res UCSF, Fac Hlth Sci, DK-2200 Copenhagen, Denmark
[5] Univ Southern Denmark, Inst Sport Sci & Clin Biomech, DK-5230 Odense M, Denmark
[6] Univ Copenhagen, Dept Biostat, DK-1014 Copenhagen, Denmark
[7] Aarhus Univ Hosp, Dept Pediat, DK-8200 Aarhus N, Denmark
[8] Oster Farimagsgade Skole, DK-2100 Copenhagen O, Denmark
[9] Rigshosp, Copenhagen Univ Hosp, Dept Oncol, DK-2100 Copenhagen O, Denmark
[10] Danish Canc Soc Res Ctr, Head Survivorship Dept, DK-2100 Copenhagen, Denmark
[11] Aarhus Univ, Dept Educ, DK-2100 Copenhagen, Denmark
[12] Rigshosp, Copenhagen Univ Hosp, Dept Occupat Therapy & Physiotherapy, DK-2100 Copenhagen O, Denmark
[13] Univ Copenhagen, Dept Nutr Exercise & Sports, DK-2200 Copenhagen N, Denmark
[14] Odense Univ Hosp, HC Andersen Childrens Hosp, Dept Pediat Hematol & Oncol, DK-5000 Odense, Denmark
来源:
关键词:
Cancer;
Pediatric;
Children;
Rehabilitation;
Physical activity;
Quality of life;
Intervention;
Peers;
Controlled;
School reentry;
QUALITY-OF-LIFE;
CHILDHOOD-CANCER;
FUNCTIONAL MOBILITY;
PEDIATRIC CANCER;
SURVIVORS;
EXERCISE;
SCHOOL;
INTERVENTION;
ATTAINMENT;
OUTCOMES;
D O I:
10.1186/1471-2407-13-544
中图分类号:
R73 [肿瘤学];
学科分类号:
100214 ;
摘要:
Background: During cancer treatment children have reduced contact with their social network of friends, and have limited participation in education, sports, and leisure activities. During and following cancer treatment, children describe school related problems, reduced physical fitness, and problems related to interaction with peers. Methods/design: The RESPECT study is a nationwide population-based prospective, controlled, mixed-methods intervention study looking at children aged 6-18 years newly diagnosed with cancer in eastern Denmark (n = 120) and a matched control group in western Denmark (n = 120). RESPECT includes Danish-speaking children diagnosed with cancer and treated at pediatric oncology units in Denmark. Primary endpoints are the level of educational achievement one year after the cessation of first-line cancer therapy, and the value of VO2max one year after the cessation of first-line cancer therapy. Secondary endpoints are quality of life measured by validated questionnaires and interviews, and physical performance. RESPECT includes a multimodal intervention program, including ambassador-facilitated educational, physical, and social interventions. The educational intervention includes an educational program aimed at the child with cancer, the child's schoolteachers and classmates, and the child's parents. Children with cancer will each have two ambassadors assigned from their class. The ambassadors visit the child with cancer at the hospital at alternating 2-week intervals and participate in the intervention program. The physical and social intervention examines the effect of early, structured, individualized, and continuous physical activity from diagnosis throughout the treatment period. The patients are tested at diagnosis, at 3 and 6 months after diagnosis, and one year after the cessation of treatment. The study is powered to quantify the impact of the combined educational, physical, and social intervention programs. Discussion: RESPECT is the first population-based study to examine the effect of early rehabilitation for children with cancer, and to use healthy classmates as ambassadors to facilitate the normalization of social life in the hospital. For children with cancer, RESPECT contributes to expanding knowledge on rehabilitation that can also facilitate rehabilitation of other children undergoing hospitalization for long-term illness.
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页数:7
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